CURE STARTS NOW INC

Family Never Fights Alone

aka DIPG Collaborative | Cincinnati, OH | www.thecurestartsnow.org

GuideStar Charity Check

CURE STARTS NOW INC

EIN: 26-0269131

Contributions tax deductible
as of August 2024

IRS BMF 509(a)(1)
as of August 12, 2024

View summary

Charity Check report

Mission

Our mission is to fund cures for pediatric brain cancers and other homerun strategies for curing cancer. We also serve to educate and aid families battling cancer with patient centered programs focusing supporting families through education, Warrior programs and other programs.

Ruling year info

2007

CEO and Executive Director

Ms Brooke Desserich

Main address

10280 Chester Rd % Brooke Desserich

Cincinnati, OH 45215 USA

Show more contact info

EIN

26-0269131

Subject area info

Cancers

Oncology

Pediatrics

Nonprofits

Population served info

Children and youth

Chronically ill people

Terminally ill people

Young adults

NTEE code info

Cancer (G30)

Fund Raising and/or Fund Distribution (E12)

Children's and Youth Services (P30)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Show Forms 990

Communication

Programs and results

Reports and documents

What we aim to solve

SOURCE: Self-reported by organization

Curing cancer

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Pediatric Cancer Research Funding

The Cure Starts Now Cancer Research Foundation
(501c3 Federal Non-Profit) is one of the only cancer foundations dedicated to a “homerun” cure for all cancers, starting first with one of the most deadly and difficult cancers: pediatric brain cancer. Many experts believe that the lessons we learn from fighting pediatric cancer may in fact provide us the critical first step in winning the battle against all forms of cancer, both pediatric and adult.

The Cure Starts Now represents a revolutionary new strategy in cancer research; one that fights cancer not according to numbers but instead based on knowledge and research. And isn’t that the way we’ll ultimately win the battle?

The Cure Starts Now’s mission is one that knows no boundaries and stops at no borders. It is an international effort of families, friends, businesses and even strangers, united in the desire to cure cancer, one child at a time. And it all started with one child, but today the inspiration is carried with us all.

In our search for the cure, we are not alone.Joined by institutions, foundations and individuals, The Cure Starts Now has been involved with the funding of over $16,000,000 in pediatric cancer research since its creation occurring at the best hospitals and institutions worldwide. From state-of-the-art mouse modeling to unprecedented registry cooperation and drug screening, some of the very best in
cancer research is possible because of your support.

Population(s) Served

Children and youth

DIPG/DMG Symposium & Collaborative

In 2011, The Cure Starts Now created and produced the International DIPG Symposium. As a result, in 2012 The Cure Starts Now founded the Diffuse Intrinsic Pontine Glioma Collaborative. Developed to work hand-in-hand with research produced from the Symposium, today the DIPG/DMG Collaborative is made up of around 25 independent foundations that agree to fund revolutionary research in a transparent, non-duplicative manner in such a way that funds can be ready as research collaboratives are built.

Population(s) Served

Children and youth

Where we work

Awards

Jaqueline Kennedy Onassis Jeffersonian Award for Community Service 2016

Rotary International

Affiliations & memberships

Jaqueline Kennedy Onassis Jeffersonian Award for Community Service 2016

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Evaluation documents

Total number of grants awarded

Totals By Year

Population(s) Served

Children and youth

Related Program

Pediatric Cancer Research Funding

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Number of research grants awarded each year. DIPG Symposium years (2015 + 2017+2019+2021+2023) is significantly higher than non-DIPG Symposium years (2024+ 2022+2020+2018+2016 + 2014).

Total dollar amount of grants awarded

Totals By Year

Population(s) Served

Children and youth

Related Program

Pediatric Cancer Research Funding

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Average donation amount.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Reports and documents

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

We seek to educate, aid and fund revolutionary cancer cure strategies that focus on those cancers that experts believe will fundamentally change how we fight cancer, thereby winning the war not by numbers but by science.

What are the organization's key strategies for making this happen?

We seek to educate through awareness campaigns and our bi-annual DIPG Symposium. The Cure Starts Now aids families battling cancer with our Warrior program, one-on-one support and other programs. Lastly, each year, thanks to our extensive network of chapters and families, we are able to use money raised to fund research selected through an extensive grant process with our highly specialized Medical Advisory Council.

What are the organization's capabilities for doing this?

Through our extensive network of chapters and families, we are able to use money raised to fund research selected through an extensive grant process with our highly specialized Medical Advisory Council. With our bi-annual DIPG Symposium, we work with researchers and institutions to ensure that research data is being shared and efforts are made to collaborate on research.

What have they accomplished so far and what's next?

Since the inception of the charity we have raised over $18 million in research funded and held five successful DIPG Symposiums.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

We shared information about our current feedback practices.

How is your organization using feedback from the people you serve?

To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
Which of the following feedback practices does your organization routinely carry out?

We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
What challenges does the organization face when collecting feedback?

We don't have any major challenges to collecting feedback

Financials

Financial data

SOURCE: IRS Form 990

Digitizing IRS form 990 data

CURE STARTS NOW INC

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: Download Data

Revenue
Contributions	$228,471
Program Services	$0
Investments	$0
Special Events	$109,774
Sales	$0
Other	$35,249
Total Revenue	$373,494

Expenses
Grants	$118,900
Salaries & Employee Benefits	$0
Professional Fees	$15,750
Occupancy	$0
Printing, Publications, Postage, etc.	$5,822
Other Expenses	$27,048
Total Expenses	$167,520
Net Gain/Loss	$205,974

Revenue
Contributions	$276,937
Government Grants	$0
Program Services	$32,220
Investments	$1,237
Special Events	$184,159
Sales	$0
Other	$33
Total Revenue	$494,586

Expenses
Program Services	$216,641
Administration	$0
Fundraising	$0
Total Expenses	$216,641
Net Gain/Loss	$277,945

Functional expenses
Accounting Fees	$0
Advertising & Promotion	$359
Information Technology Expenses	$0
Insurance Expenses	$656
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$398,880
Government Grants	$0
Program Services	$0
Investments	$12,541
Special Events	$274,071
Sales	$0
Other	$0
Total Revenue	$685,492

Expenses
Program Services	$666,362
Administration	$35,532
Fundraising	$0
Total Expenses	$701,894
Net Gain/Loss	($16,402)

Functional expenses
Accounting Fees	$0
Advertising & Promotion	$0
Information Technology Expenses	$0
Insurance Expenses	$497
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$436,712
Government Grants	$0
Program Services	$0
Investments	$18,461
Special Events	$371,611
Sales	$0
Other	$0
Total Revenue	$826,784

Expenses
Program Services	$263,775
Administration	$53,616
Fundraising	$0
Total Expenses	$317,391
Net Gain/Loss	$509,393

Functional expenses
Accounting Fees	$9,923
Advertising & Promotion	$0
Information Technology Expenses	$0
Insurance Expenses	$1,022
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$676,561
Government Grants	$0
Program Services	$0
Investments	$26,670
Special Events	$584,771
Sales	$0
Other	$0
Total Revenue	$1,288,002

Expenses
Program Services	$1,061,033
Administration	$30,982
Fundraising	$0
Total Expenses	$1,092,015
Net Gain/Loss	$195,987

Functional expenses
Accounting Fees	$0
Advertising & Promotion	$0
Information Technology Expenses	$0
Insurance Expenses	$945
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,882,372
Government Grants	$0
Program Services	$0
Investments	$27,896
Special Events	$787,321
Sales	$0
Other	$0
Total Revenue	$2,697,589

Expenses
Program Services	$592,090
Administration	$55,919
Fundraising	$97,472
Total Expenses	$745,481
Net Gain/Loss	$1,952,108

Functional expenses
Accounting Fees	$0
Advertising & Promotion	$0
Information Technology Expenses	$8,425
Insurance Expenses	$4,895
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,740,338
Government Grants	$0
Program Services	$0
Investments	$5,014
Special Events	$992,960
Sales	$0
Other	$0
Total Revenue	$2,738,312

Expenses
Program Services	$5,190,573
Administration	$58,948
Fundraising	$53,025
Total Expenses	$5,302,546
Net Gain/Loss	($2,564,234)

Functional expenses
Accounting Fees	$0
Advertising & Promotion	$0
Information Technology Expenses	$278
Insurance Expenses	$3,999
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$2,261,773
Government Grants	$0
Program Services	$0
Investments	$19,316
Special Events	$403,458
Sales	$0
Other	$0
Total Revenue	$2,684,547

Expenses
Program Services	$1,709,332
Administration	$84,950
Fundraising	$155,288
Total Expenses	$1,949,570
Net Gain/Loss	$734,977

Functional expenses
Accounting Fees	$0
Advertising & Promotion	$5,195
Information Technology Expenses	$182,055
Insurance Expenses	$2,440
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$2,233,679
Government Grants	$0
Program Services	$0
Investments	($66,775)
Special Events	$388,907
Sales	$0
Other	$0
Total Revenue	$2,555,811

Expenses
Program Services	$5,358,844
Administration	$101,424
Fundraising	$223,374
Total Expenses	$5,683,642
Net Gain/Loss	($3,127,831)

Functional expenses
Accounting Fees	$32,204
Advertising & Promotion	$0
Information Technology Expenses	$153,114
Insurance Expenses	$8,981
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$2,947,661
Government Grants	$0
Program Services	$0
Investments	$32,754
Special Events	$1,388,047
Sales	$0
Other	$0
Total Revenue	$4,368,462

Expenses
Program Services	$1,079,057
Administration	$131,291
Fundraising	$469,292
Total Expenses	$1,679,640
Net Gain/Loss	$2,688,822

Functional expenses
Accounting Fees	$53,123
Advertising & Promotion	$0
Information Technology Expenses	$197,720
Insurance Expenses	$9,347
Interest Expenses	$0
Investment Management Fees	$135
Legal Fees	$0
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$1,960,169
Government Grants	$0
Program Services	$0
Investments	$43,940
Special Events	$1,392,080
Sales	$0
Other	$0
Total Revenue	$3,396,189

Expenses
Program Services	$1,724,753
Administration	$176,008
Fundraising	$408,025
Total Expenses	$2,308,786
Net Gain/Loss	$1,087,403

Functional expenses
Accounting Fees	$23,038
Advertising & Promotion	$0
Information Technology Expenses	$166,460
Insurance Expenses	$14,153
Interest Expenses	$0
Investment Management Fees	$106
Legal Fees	$2,380
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$2,129,478
Government Grants	$0
Program Services	$0
Investments	$59,231
Special Events	$1,221,308
Sales	$0
Other	$0
Total Revenue	$3,410,017

Expenses
Program Services	$3,292,848
Administration	$132,971
Fundraising	$396,378
Total Expenses	$3,822,197
Net Gain/Loss	($412,180)

Functional expenses
Accounting Fees	$35,739
Advertising & Promotion	$0
Information Technology Expenses	$78,924
Insurance Expenses	$14,804
Interest Expenses	$0
Investment Management Fees	$18
Legal Fees	$18,728
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$2,945,159
Government Grants	$433,260
Program Services	$0
Investments	$0
Special Events	$872,574
Sales	($19,102)
Other	$705
Total Revenue	$4,232,596

Expenses
Program Services	$2,771,097
Administration	$129,836
Fundraising	$392,394
Total Expenses	$3,293,327
Net Gain/Loss	$939,269

Functional expenses
Accounting Fees	$36,770
Advertising & Promotion	$47,260
Information Technology Expenses	$131,784
Insurance Expenses	$14,480
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$11,902
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

Revenue
Contributions	$4,315,043
Government Grants	$0
Program Services	$0
Investments	$0
Special Events	$912,422
Sales	$0
Other	$4,165
Total Revenue	$5,231,630

Expenses
Program Services	$5,404,103
Administration	$132,925
Fundraising	$520,946
Total Expenses	$6,057,974
Net Gain/Loss	($826,344)

Functional expenses
Accounting Fees	$24,956
Advertising & Promotion	$145,223
Information Technology Expenses	$129,873
Insurance Expenses	$6,270
Interest Expenses	$0
Investment Management Fees	$0
Legal Fees	$10,610
Pension Plan Contributions	$0
Professional Fundraising Expenses	$0

CURE STARTS NOW INC

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: Download Data

Assets	Jan 01, 2009	Dec 31, 2009	Change
Contributions	$228,471
Cash & Equivalents	$42,103	$223,764	$181,661
Fixed Assets (LBE - Depreciation)	$0	$0	$0
Other	$7,500	$34,575	$27,075
Total Assets	$49,603	$258,339	$208,736

Liabilities	Jan 01, 2009	Dec 31, 2009	Change
Total Liabilities	$0	$1,917	$1,917

Fund balance	Jan 01, 2009	Dec 31, 2009	Change
Net Assets	$49,603	$256,422	$206,819

Assets	Jan 01, 2010	Dec 31, 2010	Change
Contributions	$276,937
Cash & Equivalents	$223,764	$513,761	$289,997
Accounts Receivable	$29,802	$26,704	($3,098)
Pledges & Grants Receivable	$0	$0	$0
Receivable, Other	$0	$0	$0
Inventories for Sale or Use	$0	$0	$0
Investment, Securities	$812	$70,448	$69,636
Investment, Other	$0	$0	$0
Fixed Assets (LBE - Depreciation)	$0	$0	$0
Other	$3,961	$0	($3,961)
Total Assets	$258,339	$610,913	$352,574

Liabilities	Jan 01, 2010	Dec 31, 2010	Change
Accounts Payable	$1,917	$2,229	$312
Grants Payable	$0	$75,000	$75,000
Deferred Revenue	$0	$0	$0
Loans and Notes	$0	$0	$0
Tax-Exempt Bond Liabilities	$0	$0	$0
Other	$0	$0	$0
Total Liabilities	$1,917	$77,229	$75,312

Fund balance	Jan 01, 2010	Dec 31, 2010	Change
Temporarily Restricted Net Assets	$0	$0	$0
Permanently Restricted Net Assets	$0	$0	$0
Total Restricted Net Assets	$0	$0	$0
Unrestricted Net Assets	$256,422	$533,684	$277,262
Net Assets	$256,422	$533,684	$277,262

Assets	Jan 01, 2011	Dec 31, 2011	Change
Contributions	$398,880
Cash & Equivalents	$513,761	$396,583	($117,178)
Accounts Receivable	$26,704	$0	($26,704)
Pledges & Grants Receivable	$0	$0	$0
Receivable, Other	$0	$0	$0
Inventories for Sale or Use	$0	$0	$0
Investment, Securities	$70,448	$315,296	$244,848
Investment, Other	$0	$0	$0
Fixed Assets (LBE - Depreciation)	$0	$0	$0
Other	$0	$12,774	$12,774
Total Assets	$610,913	$724,653	$113,740

Liabilities	Jan 01, 2011	Dec 31, 2011	Change
Accounts Payable	$2,229	$16,979	$14,750
Grants Payable	$75,000	$155,000	$80,000
Deferred Revenue	$0	$88,203	$88,203
Loans and Notes	$0	$0	$0
Tax-Exempt Bond Liabilities	$0	$0	$0
Other	$0	$0	$0
Total Liabilities	$77,229	$260,182	$182,953

Fund balance	Jan 01, 2011	Dec 31, 2011	Change
Temporarily Restricted Net Assets	$0	$12,768	$12,768
Permanently Restricted Net Assets	$0	$0	$0
Total Restricted Net Assets	$0	$12,768	$12,768
Unrestricted Net Assets	$533,684	$451,703	($81,981)
Net Assets	$533,684	$464,471	($69,213)

CURE STARTS NOW INC

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of CURE STARTS NOW INC’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Fiscal year: Jan 01 - Dec 31 View full report Download data

Business model indicators

Profitability	2018	2019	2020	2021	2022
Unrestricted surplus (deficit) before depreciation	$2,679,625	$852,833	-$501,179	$1,102,913	-$939,951
As % of expenses	162.0%	37.6%	-13.3%	33.9%	-15.6%
Unrestricted surplus (deficit) after depreciation	$2,654,418	$810,034	-$546,499	$1,059,268	-$983,532
As % of expenses	158.0%	35.1%	-14.3%	32.2%	-16.2%

Revenue composition
Total revenue (unrestricted & restricted)	$4,368,462	$3,396,189	$3,410,017	$4,232,596	$5,231,630
Total revenue, % change over prior year	70.9%	-22.3%	0.4%	24.1%	23.6%
Program services revenue	0.0%	0.0%	0.0%	0.0%	0.0%
Membership dues	0.0%	0.0%	0.0%	0.0%	0.0%
Investment income	0.0%	0.0%	0.0%	0.0%	0.0%
Government grants	0.0%	0.0%	0.0%	10.2%	0.0%
All other grants and contributions	99.3%	98.7%	98.3%	90.2%	99.9%
Other revenue	0.7%	1.3%	1.7%	-0.4%	0.1%

Expense composition
Total expenses before depreciation	$1,654,433	$2,265,987	$3,776,877	$3,249,682	$6,014,393
Total expenses, % change over prior year	-70.8%	37.0%	66.7%	-14.0%	85.1%
Personnel	24.9%	21.5%	16.8%	24.9%	18.0%
Professional fees	3.2%	1.1%	1.4%	1.6%	0.7%
Occupancy	9.2%	9.1%	5.4%	5.5%	2.9%
Interest	0.0%	0.0%	0.0%	0.0%	0.0%
Pass-through	66.0%	26.8%	69.0%	46.4%	68.9%
All other expenses	-3.3%	41.4%	7.3%	21.5%	9.5%

Full cost components (estimated)	2018	2019	2020	2021	2022
Total expenses (after depreciation)	$1,679,640	$2,308,786	$3,822,197	$3,293,327	$6,057,974
One month of savings	$137,869	$188,832	$314,740	$270,807	$501,199
Debt principal payment	$0	$0	$0	$0	$0
Fixed asset additions	$76,374	$114,149	$0	$0	$0
Total full costs (estimated)	$1,893,883	$2,611,767	$4,136,937	$3,564,134	$6,559,173

Capital structure indicators

Liquidity	2018	2019	2020	2021	2022
Months of cash	7.2	10.3	5.2	9.2	3.8
Months of cash and investments	7.6	10.4	5.2	9.3	3.8
Months of estimated liquid unrestricted net assets	8.3	10.0	4.4	9.2	3.1

Balance sheet composition	2018	2019	2020	2021	2022
Cash	$994,312	$1,946,805	$1,623,906	$2,479,537	$1,916,662
Investments	$50,076	$26,230	$8,910	$27,780	$2,019
Receivables	$0	$84,343	$60,107	$36,645	$6,553
Gross land, buildings, equipment (LBE)	$189,287	$242,640	$242,640	$242,640	$240,135
Accumulated depreciation (as a % of LBE)	40.2%	24.0%	42.6%	60.6%	78.4%
Liabilities (as a % of assets)	8.8%	3.9%	9.0%	2.3%	23.3%
Unrestricted net assets	$1,261,811	$2,071,845	$1,525,346	$2,584,614	$1,601,082
Temporarily restricted net assets	$0	N/A	N/A	N/A	N/A
Permanently restricted net assets	$0	N/A	N/A	N/A	N/A
Total restricted net assets	$0	$271,853	$345,000	$225,000	$412,105
Total net assets	$1,261,811	$2,343,698	$1,870,346	$2,809,614	$2,013,187

Key data checks

Key data checks	2018	2019	2020	2021	2022
Material data errors	No	No	No	No	No

Operations

The people, governance practices, and partners that make the organization tick.

Documents

Letter of Determination

Form 1023/1024 is not available for this organization

CEO and Executive Director

Ms Brooke Desserich

Board of directors data

Download the most recent year of board of directors data for this organization

Board chair

Mr. Keith Desserich

Keith Desserich

Doug Desserich

Tamara Ekis

Gavin Baumgardner

Terry Regan

Alyssa Hawranko

Dan Lee

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 2/3/2023

Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity

White/Caucasian/European

Gender identity

Female, Not transgender

Sexual orientation

Heterosexual or Straight

Disability status

Data

We review compensation data across the organization (and by staff levels) to identify disparities by race.
We ask team members to identify racial disparities in their programs and / or portfolios.
We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
We disaggregate data by demographics, including race, in every policy and program measured.
We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.

Policies and processes

We use a vetting process to identify vendors and partners that share our commitment to race equity.
We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
We have community representation at the board level, either on the board itself or through a community advisory board.
We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.

There are no contractors recorded for this organization.

Professional fundraisers

Fiscal year ending

SOURCE: IRS Form 990 Schedule G

Solicitation activities

Gross receipts from fundraising

Retained by organization

Paid to fundraiser

CURE STARTS NOW INC

Family Never Fights Alone

Mission

Is this your nonprofit?

Programs and results

Reports and documents

What we aim to solve

Our programs

Pediatric Cancer Research Funding

DIPG/DMG Symposium & Collaborative

Where we work

Awards

Affiliations & memberships

Our results

Evaluation documents

Total number of grants awarded

Totals By Year

Population(s) Served

Related Program

Type of Metric

Direction of Success

Context Notes

Total dollar amount of grants awarded

Totals By Year

Population(s) Served

Related Program

Type of Metric

Direction of Success

Context Notes

Number of conference attendees

Totals By Year

Population(s) Served

Related Program

Type of Metric

Direction of Success

Context Notes

Total number of organization members

Totals By Year

Population(s) Served

Related Program

Type of Metric

Direction of Success

Context Notes

Number of conferences held

Totals By Year

Population(s) Served

Related Program

Type of Metric

Direction of Success

Context Notes

Average grant amount

Totals By Year

Population(s) Served

Related Program

Type of Metric

Direction of Success

Context Notes

Average number of dollars received per donor

Totals By Year

Population(s) Served

Related Program

Type of Metric

Direction of Success

Context Notes

Our Sustainable Development Goals

Goals & Strategy

Reports and documents

Charting impact

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

What have they accomplished so far and what's next?

How we listen

Financials

Financial documents

Revenue vs. expenses: breakdown

Liquidity in 2022 info

3.13

Months of cash in 2022 info

3.8

Liquidity in 2022

Months of cash in 2022

Fringe rate in 2022

Funding sources

Assets & liabilities