PLATINUM2024

Childhood Arthritis & Rheumatology Research Alliance

aka CARRA   |   Washington, DC   |  www.carragroup.org
GuideStar Charity Check

Childhood Arthritis & Rheumatology Research Alliance

EIN: 46-4152355


Mission

CARRA members work together to capitalize on opportunities, actively develop a structure and a scientific agenda, and collaborate with potential funding sources to create a research alliance that benefits our patients. CARRA Conducts collaborative research to prevent, treat and cure pediatric rheumatic diseases.

Ruling year info

2014

President

Robert Colbert MD, PhD

Past President

Emily von Scheven MD, MAS

Main address

1050 Connecticut Ave NW Suite 500

Washington, DC 20036 USA

Show more contact info

EIN

46-4152355

Subject area info

Pediatrics

Arthritis

Population served info

Children and youth

Chronically ill people

NTEE code info

Arthritis (G51)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

CARRA conducts and supports innovative and collaborative clinical and translational research that generates new knowledge and improves the lives of children and families affected by pediatric rheumatic disease.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Advancing Research

CARRA’s culture of collaboration focuses on facilitating, accelerating, funding, and performing research driven by academicians, clinicians, and patients and families to fulfill its mission. CARRA does this through a multi-pronged approach:
-Direct Funding to Investigators through its Intramural Grants Program, funded in large part through the partnership of the Arthritis Foundation. CARRA’s program offers various funding opportunities to support investigators at all career levels and advances research that furthers the CARRA mission.
-The CARRA Registry and Biorepository are the cornerstone of CARRA’s research and were established to make it possible for all affected children in North America to have the opportunity to participate in meaningful and high-quality clinical and translational research.
-Stakeholder engagement is key to success. Partnering with patients and their families and others ensure research will address the most important questions to those most impacted.

Population(s) Served
Children and youth
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total number of organization members

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Caregivers, People with diseases and illnesses

Related Program

Advancing Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Metric measured as of July of each year.

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Caregivers, Families, People with diseases and illnesses

Related Program

Advancing Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

Financials

Childhood Arthritis & Rheumatology Research Alliance
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022 info

SOURCE: IRS Form 990

4.60

Average of 7.66 over 9 years

Months of cash in 2022 info

SOURCE: IRS Form 990

12.7

Average of 24.2 over 9 years

Fringe rate in 2022 info

SOURCE: IRS Form 990

15%

Average of 2% over 9 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

Childhood Arthritis & Rheumatology Research Alliance

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

Childhood Arthritis & Rheumatology Research Alliance

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Childhood Arthritis & Rheumatology Research Alliance

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of Childhood Arthritis & Rheumatology Research Alliance’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Business model indicators

Profitability info 2018 2019 2020 2021 2022
Unrestricted surplus (deficit) before depreciation $1,565,955 $1,715,497 $415,275 $781,158 -$590,622
As % of expenses 19.9% 20.4% 5.1% 7.8% -5.3%
Unrestricted surplus (deficit) after depreciation $1,565,955 $1,712,317 $411,035 $776,918 -$597,872
As % of expenses 19.9% 20.3% 5.1% 7.8% -5.4%
Revenue composition info
Total revenue (unrestricted & restricted) $9,976,474 $11,029,270 $5,833,140 $6,468,070 $10,561,848
Total revenue, % change over prior year -22.0% 10.6% -47.1% 10.9% 63.3%
Program services revenue 38.9% 33.0% 46.5% 96.3% 92.3%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 0.2% 1.5% 0.8% 0.0% 1.6%
Government grants 0.0% 0.0% 0.0% 0.0% 0.0%
All other grants and contributions 60.4% 65.4% 51.5% 3.2% 6.1%
Other revenue 0.5% 0.1% 1.1% 0.5% 0.0%
Expense composition info
Total expenses before depreciation $7,876,769 $8,412,523 $8,084,532 $10,020,245 $11,137,470
Total expenses, % change over prior year 49.4% 6.8% -3.9% 23.9% 11.1%
Personnel 3.2% 3.4% 3.6% 2.6% 9.5%
Professional fees 72.4% 74.6% 80.1% 72.5% 17.7%
Occupancy 0.0% 0.0% 0.0% 0.0% 0.0%
Interest 0.0% 0.0% 0.0% 0.0% 0.0%
Pass-through 7.1% 4.3% 7.0% 10.4% 18.0%
All other expenses 17.3% 17.7% 9.3% 14.5% 54.8%
Full cost components (estimated) info 2018 2019 2020 2021 2022
Total expenses (after depreciation) $7,876,769 $8,415,703 $8,088,772 $10,024,485 $11,144,720
One month of savings $656,397 $701,044 $673,711 $835,020 $928,123
Debt principal payment $0 $0 $0 $0 $0
Fixed asset additions $0 $0 $0 $0 $0
Total full costs (estimated) $8,533,166 $9,116,747 $8,762,483 $10,859,505 $12,072,843

Capital structure indicators

Liquidity info 2018 2019 2020 2021 2022
Months of cash 15.1 16.9 19.1 19.4 12.7
Months of cash and investments 15.1 16.9 19.1 19.4 12.7
Months of estimated liquid unrestricted net assets 16.9 18.2 19.6 16.7 14.4
Balance sheet composition info 2018 2019 2020 2021 2022
Cash $9,887,880 $11,872,686 $12,852,834 $16,174,883 $11,754,538
Investments $0 $0 $0 $0 $0
Receivables $8,499,180 $8,947,168 $5,768,886 $2,548,898 $5,176,447
Gross land, buildings, equipment (LBE) $0 $0 $0 $0 $0
Accumulated depreciation (as a % of LBE) 0.0% 0.0% 0.0% 0.0% 0.0%
Liabilities (as a % of assets) 6.8% 5.2% 6.2% 25.5% 21.6%
Unrestricted net assets $11,074,283 $12,786,600 $13,197,635 $13,974,553 $13,376,681
Temporarily restricted net assets $6,098,750 N/A N/A N/A N/A
Permanently restricted net assets $0 N/A N/A N/A N/A
Total restricted net assets $6,098,750 $7,000,000 $4,333,333 $0 $15,000
Total net assets $17,173,033 $19,786,600 $17,530,968 $13,974,553 $13,391,681

Key data checks

Key data checks info 2018 2019 2020 2021 2022
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Letter of Determination is not available for this organization
Form 1023/1024 is not available for this organization

President

Robert Colbert MD, PhD

Dr. Colbert served as the director of the Division of Rheumatology at Cincinnati Children's Hospital Medical Center (CCHMC) of the University of Cincinnati College of Medicine (UCCOM). He is certified in pediatric rheumatology by the American Board of Pediatrics and holds memberships in the American Academy of Pediatrics, the American Association of Immunologists, the American College of Rheumatology, the Society for Pediatric Research, and the American Pediatric Society. His research career has included authoring 53 papers and serving as an investigator on a number of NIAMS and other NIH and industry-funded research studies. Dr. Colbert’s accomplishments have been recognized in numerous honors and awards, including Pfizer Postdoctoral Fellowship and Scholar Awards, the James R. Klinenberg Science Award from the Arthritis Foundation, and the American College of Rheumatology’s Deborah Kredich Pediatric Rheumatology Service Award.

Past President

Emily von Scheven

In 2001, as a young faculty member, Dr. von Scheven was invited to attend a small meeting at Stanford to discuss the development of a collaborative research network that would bring research to the patient, and vice versa. What she did not know at the time, was that the newly created network, called the Pediatric Rheumatology Research Network, would eventually become CARRA, and that CARRA would play a central role both in the pediatric rheumatology community and in her own professional life. CARRA has undergone tremendous growth, and has emerged as a respected, productive and well-supported organization with a broad constituent base. We now face new challenges, such as ensuring that our efforts are meaningful and impactful, that we stay focused on the priorities of our diverse community and that we address issues of sustainability.

Number of employees

Source: IRS Form 990

Childhood Arthritis & Rheumatology Research Alliance

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

Childhood Arthritis & Rheumatology Research Alliance

Highest paid employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of highest paid employee data for this organization

Childhood Arthritis & Rheumatology Research Alliance

Board of directors
as of 02/26/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Dr. Christy Sandborg

Stanford University

Dr. Robert Colbert

Serves in a personal capacity

Dr. Stacy Ardoin

Nationwide Children's Hospital

Dr. Jay Mehta

Children's Hospital of Philadelphia

Dr. Emily von Sheven

UCSF Benioff Children's Hospital

Dr. Harry Saal

Retrotope

Dr. Carol Wallace

Professor Emeritus, University of Washington

Leigh White

Dr. Daniel Solomon

Brigham and Women's Hospital

Dr. John Sundy

Seismic Therapeutic

Dr. Robert Fuhlbrigge

Children's Hospital Colorado

Contractors

Fiscal year ending
There are no fundraisers recorded for this organization.