GOLD2024

Transplant Recipients International Organization Inc Parent

Connecting the pre and post transplant community and empowering patients and their families facing the need for an organ transplant and living life afterwards.

aka TRIO   |   Lithia, FL   |  https://trioweb.org
GuideStar Charity Check

Transplant Recipients International Organization Inc

EIN: 25-1569468


Mission

TRIO is a non-profit international organization committed to improving the quality of lives touched by the miracle of transplantation through support, advocacy, education, and awareness.

Notes from the nonprofit

https://www.trioweb.org/about/trio-board.html

Ruling year info

1990

President

Lorrinda Gray-Davis

Main address

17560 Buckingham Garden Drive

Lithia, FL 33547 USA

Show more contact info

EIN

25-1569468

Subject area info

Health

Business and industry

Population served info

People with diseases and illnesses

Families

Adolescents

NTEE code info

Alliance/Advocacy Organizations (E01)

Cancer (G30)

Alliance/Advocacy Organizations (Y01)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Communication

Affiliations

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The resources dedicated to supporting the transplant community are scattered across many different sources and tend to be in silos based on the different types of transplantation involved. Many of our customers are Pre transplant, where there medical conditions are severe enough to eventually lead to the need for transplant. There is a tremendous amount of communal knowledge sharing among our constituents (Pre/Post Transplantees, Recipient and Donor Care Givers and Donor Families), very little of which can be verified and medically sourced. There are multiple stakeholders (Industry Providers, Transplant Programs, OPO's, National NFP's, Online/& Local communities/groups and the Federal system) that all provide content but tend to be very parochial in their messaging. TRIO believes there needs to be a resource that will curate existing content, develop needed content and services to help make supporting the transplant community a one -stop-shop.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Post-transplant Cancer Education

providing resources for patient education around the subject of higher risk for cancers in the post-transplant population.

Population(s) Served
People with diseases and illnesses

A collection of over 100 recorded video presentations by transplant related professionals and patients on transplant related topics. Each video is either a presentation recorded with audience Q&A or a one-on-one interview shared via publicly available YouTube shows to help patients learn more about their topics of interest. This program began in 2008 and continues with grant supported new topics added monthly.

Population(s) Served
Families
People with diseases and illnesses

Annual scholarships awarded to students with transplants, organ donor families and transplant related families

Population(s) Served
Adolescents
Families

Team USA is a program encouraging transplant recipients to be physically active and participate in sports and fitness programs in order to improve transplant outcomes. Team USA sends a team of athletes to the biannual World Transplant Games and the Winter World Transplant Games, and also fields a national team of football (soccer) players in the Transplant Football World Cup.

Population(s) Served
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients who report adequate access to services

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses

Related Program

Post-transplant Cancer Education

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Hours of support group services offered

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with other disabilities, Chronically ill people

Related Program

Post-transplant Cancer Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of families served in heart-related treatment

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with other disabilities, People with physical disabilities, Chronically ill people

Related Program

Post-transplant Cancer Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of students receiving information on organ and tissue donation

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

Transplant Presentation Library

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Number of groups/individuals benefiting from tools/resources/education materials provided

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with other disabilities, Chronically ill people

Related Program

Transplant Presentation Library

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

users of the TRIO Transplant Presetatnion Library of video programs

Number of new grants received

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of groups brought together in a coalition/alliance/partnership

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with other disabilities, Chronically ill people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Honor the Gift coalition of 25 organizations promoting kidney financial support federal legislation

Number of attendees present at rallies/events

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

in this new world of COVID-19 restrictions, these events were webinars open to members and non-members alike, several over the course of 2020

Number of return website visitors

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with other disabilities, Chronically ill people

Related Program

Post-transplant Cancer Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of accolades/recognition received from third-party organizations

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, People with other disabilities, Adults, Adolescents, Children

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

National award by verywellhealth: The 8 Best Transplant Support Groups of 2021 Best Overall: Transplant Recipients International Organization (TRIO)

Number of participants attending course/session/workshop

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

Post-transplant Cancer Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

users of the TRIO Post-transplant Cancer educational resoruce

Number of new programs/program sites

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Post-transplant Cancer Education

Type of Metric

Input - describing resources we use

Direction of Success

Holding steady

Context Notes

After four years of soft-launch, the TRIO Post-transplant Cancer educational resource was formally released Nov 2020

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

TRIO provides C.A.R.E. to an Online and Physical community of transplant candidates, recipients and their families that creates:

Community
Creates physical & virtual community to foster relationships and friendships between people whose lives have been impacted by organ, eye and tissue donation.

Awareness
Promotes the importance of organ and tissue donation across the world.

Recognition
Recognizes and respect the sacrifices made by organ, eye and tissue donors and their families.

Education
Offers word-class programming and other important resources that helps educate and provides support to transplant candidates, transplant recipients, transplant care givers and donor families. Alll with a focus on promoting organ donation.

We have an almost 40 year old organization supported by 3000 members and 20 active chapters. We have begun to build and focus on developing our online community to grow our numbers in a significant and meaningful way that will attract the attention and funding from various stakeholders looking to improve quality and outcomes in transplant patients and create a greater awareness of how people can help. Our intention is to build enough critical mass in virtual membership, offering enough value that we become a group that support a reasonable membership fee and begin to attract the sponsorship from industry. We would like to be in a position where TRIO is run and powered by a paid staff, reporting to a broader, larger board of directors. Long term success will be dependent on our ability to create value for our constituents and stakeholders. We believe that this is a very achievable goal.

We have an existing 503(c)3 designation and a 30 year history of focusing on our four core customers. Most of what needs to be done is to better identify and manage partnerships with the key stakeholders to help ensure we help them reach their goals. Presently, we have a very tenured volunteer staff with the knowledge, connections and energy to help shepherd this group through this transition. We are seeking additional sources of funding and are actively making moves to improve our efforts in sourcing virtual members and other means of funding. Our board has assembled a strategic plan and will be meeting in this year to continue working toward achieving its goals.
We will have to make investment in a number of new value added programs, content and technology to meet and address our virtual community, which we believe will help feed and grow our local chapter organization.

We have successfully recruited and added new board memberships and have agreed that these changes are necessary for the long term success of TRIO. As we function today, we already provide significant value to many of our customers, but realize that there is no single NFP that really pulls all the needs and resources into a single group that could address the needs of the entire community without replacing the quality and outcomes provided by other key stakeholders in the transplant community. This is is an audacious undertaking that will furher simplify the needs of the transplant community.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, We don’t have the right technology to collect and aggregate feedback efficiently, The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection, It is difficult to get honest feedback from the people we serve, It is difficult to identify actionable feedback

Financials

Transplant Recipients International Organization Inc
Fiscal year: Feb 01 - Jan 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Financial data

SOURCE: IRS Form 990

Transplant Recipients International Organization Inc

Revenue & expenses

Fiscal Year: Feb 01 - Jan 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

Transplant Recipients International Organization Inc

Balance sheet

Fiscal Year: Feb 01 - Jan 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

President

Lorrinda Gray-Davis

Linda is a liver transplant recipient (since 2010) serving in the volunteer role of TRIO president since 2022 with board service beginning in 2019. She founded the TRIO Oklahoma chapter in 2020. Lorrinda is the Vice Chair of the Patient Affairs Committee of OPTN. She is the co-chair of the "Honor the Gift" Coalition. She is a national speaker and advocate for organ donation with over 200 speaking and workshop events from coast to coast.

Transplant Recipients International Organization Inc

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

Transplant Recipients International Organization Inc

Board of directors
as of 10/01/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Lorrinda Gray-Davis

TRIO

Term: 2022 - 2024

Elizabeth Rubin

Christopher Jones

David Reich

Michael Hatcher

Calvin Henry

Joseph Karan

Kimberly Marsh

Ira Copperman

Susan Pincus

Edward Garcia

Mary Baliker

Collen Gerber

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 10/1/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

Equity strategies

Last updated: 10/01/2024

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.