Transplant Recipients International Organization Inc Parent
Connecting the pre and post transplant community and empowering patients and their families facing the need for an organ transplant and living life afterwards.
Transplant Recipients International Organization Inc
EIN: 25-1569468
as of November 2024
as of November 11, 2024
Programs and results
What we aim to solve
The resources dedicated to supporting the transplant community are scattered across many different sources and tend to be in silos based on the different types of transplantation involved. Many of our customers are Pre transplant, where there medical conditions are severe enough to eventually lead to the need for transplant. There is a tremendous amount of communal knowledge sharing among our constituents (Pre/Post Transplantees, Recipient and Donor Care Givers and Donor Families), very little of which can be verified and medically sourced. There are multiple stakeholders (Industry Providers, Transplant Programs, OPO's, National NFP's, Online/& Local communities/groups and the Federal system) that all provide content but tend to be very parochial in their messaging. TRIO believes there needs to be a resource that will curate existing content, develop needed content and services to help make supporting the transplant community a one -stop-shop.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Post-transplant Cancer Education
providing resources for patient education around the subject of higher risk for cancers in the post-transplant population.
Transplant Presentation Library
A collection of over 100 recorded video presentations by transplant related professionals and patients on transplant related topics. Each video is either a presentation recorded with audience Q&A or a one-on-one interview shared via publicly available YouTube shows to help patients learn more about their topics of interest. This program began in 2008 and continues with grant supported new topics added monthly.
Organ Transplant related student scholarship program
Annual scholarships awarded to students with transplants, organ donor families and transplant related families
Team USA
Team USA is a program encouraging transplant recipients to be physically active and participate in sports and fitness programs in order to improve transplant outcomes. Team USA sends a team of athletes to the biannual World Transplant Games and the Winter World Transplant Games, and also fields a national team of football (soccer) players in the Transplant Football World Cup.
Where we work
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of clients who report adequate access to services
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults, People with diseases and illnesses
Related Program
Post-transplant Cancer Education
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Hours of support group services offered
This metric is no longer tracked.Totals By Year
Population(s) Served
People with other disabilities, Chronically ill people
Related Program
Post-transplant Cancer Education
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of families served in heart-related treatment
This metric is no longer tracked.Totals By Year
Population(s) Served
People with other disabilities, People with physical disabilities, Chronically ill people
Related Program
Post-transplant Cancer Education
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of students receiving information on organ and tissue donation
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Related Program
Transplant Presentation Library
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Number of groups/individuals benefiting from tools/resources/education materials provided
This metric is no longer tracked.Totals By Year
Population(s) Served
People with other disabilities, Chronically ill people
Related Program
Transplant Presentation Library
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
users of the TRIO Transplant Presetatnion Library of video programs
Number of new grants received
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of groups brought together in a coalition/alliance/partnership
This metric is no longer tracked.Totals By Year
Population(s) Served
People with other disabilities, Chronically ill people
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Honor the Gift coalition of 25 organizations promoting kidney financial support federal legislation
Number of attendees present at rallies/events
This metric is no longer tracked.Totals By Year
Population(s) Served
Health
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Context Notes
in this new world of COVID-19 restrictions, these events were webinars open to members and non-members alike, several over the course of 2020
Number of return website visitors
This metric is no longer tracked.Totals By Year
Population(s) Served
People with other disabilities, Chronically ill people
Related Program
Post-transplant Cancer Education
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of accolades/recognition received from third-party organizations
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, People with other disabilities, Adults, Adolescents, Children
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
National award by verywellhealth: The 8 Best Transplant Support Groups of 2021 Best Overall: Transplant Recipients International Organization (TRIO)
Number of participants attending course/session/workshop
This metric is no longer tracked.Totals By Year
Population(s) Served
Health
Related Program
Post-transplant Cancer Education
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
users of the TRIO Post-transplant Cancer educational resoruce
Number of new programs/program sites
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Post-transplant Cancer Education
Type of Metric
Input - describing resources we use
Direction of Success
Holding steady
Context Notes
After four years of soft-launch, the TRIO Post-transplant Cancer educational resource was formally released Nov 2020
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
TRIO provides C.A.R.E. to an Online and Physical community of transplant candidates, recipients and their families that creates:
Community
Creates physical & virtual community to foster relationships and friendships between people whose lives have been impacted by organ, eye and tissue donation.
Awareness
Promotes the importance of organ and tissue donation across the world.
Recognition
Recognizes and respect the sacrifices made by organ, eye and tissue donors and their families.
Education
Offers word-class programming and other important resources that helps educate and provides support to transplant candidates, transplant recipients, transplant care givers and donor families. Alll with a focus on promoting organ donation.
What are the organization's key strategies for making this happen?
We have an almost 40 year old organization supported by 3000 members and 20 active chapters. We have begun to build and focus on developing our online community to grow our numbers in a significant and meaningful way that will attract the attention and funding from various stakeholders looking to improve quality and outcomes in transplant patients and create a greater awareness of how people can help. Our intention is to build enough critical mass in virtual membership, offering enough value that we become a group that support a reasonable membership fee and begin to attract the sponsorship from industry. We would like to be in a position where TRIO is run and powered by a paid staff, reporting to a broader, larger board of directors. Long term success will be dependent on our ability to create value for our constituents and stakeholders. We believe that this is a very achievable goal.
What are the organization's capabilities for doing this?
We have an existing 503(c)3 designation and a 30 year history of focusing on our four core customers. Most of what needs to be done is to better identify and manage partnerships with the key stakeholders to help ensure we help them reach their goals. Presently, we have a very tenured volunteer staff with the knowledge, connections and energy to help shepherd this group through this transition. We are seeking additional sources of funding and are actively making moves to improve our efforts in sourcing virtual members and other means of funding. Our board has assembled a strategic plan and will be meeting in this year to continue working toward achieving its goals.
We will have to make investment in a number of new value added programs, content and technology to meet and address our virtual community, which we believe will help feed and grow our local chapter organization.
What have they accomplished so far and what's next?
We have successfully recruited and added new board memberships and have agreed that these changes are necessary for the long term success of TRIO. As we function today, we already provide significant value to many of our customers, but realize that there is no single NFP that really pulls all the needs and resources into a single group that could address the needs of the entire community without replacing the quality and outcomes provided by other key stakeholders in the transplant community. This is is an audacious undertaking that will furher simplify the needs of the transplant community.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, We don’t have the right technology to collect and aggregate feedback efficiently, The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection, It is difficult to get honest feedback from the people we serve, It is difficult to identify actionable feedback
Financials
Revenue vs. expenses: breakdown
Financial data
Transplant Recipients International Organization Inc
Revenue & expensesFiscal Year: Feb 01 - Jan 31
Transplant Recipients International Organization Inc
Balance sheetFiscal Year: Feb 01 - Jan 31
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Operations
The people, governance practices, and partners that make the organization tick.
Documents
President
Lorrinda Gray-Davis
Linda is a liver transplant recipient (since 2010) serving in the volunteer role of TRIO president since 2022 with board service beginning in 2019. She founded the TRIO Oklahoma chapter in 2020. Lorrinda is the Vice Chair of the Patient Affairs Committee of OPTN. She is the co-chair of the "Honor the Gift" Coalition. She is a national speaker and advocate for organ donation with over 200 speaking and workshop events from coast to coast.
Transplant Recipients International Organization Inc
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
There are no highest paid employees recorded for this organization.
Transplant Recipients International Organization Inc
Board of directorsas of 10/01/2024
Board of directors data
Lorrinda Gray-Davis
TRIO
Term: 2022 - 2024
Elizabeth Rubin
Christopher Jones
David Reich
Michael Hatcher
Calvin Henry
Joseph Karan
Kimberly Marsh
Ira Copperman
Susan Pincus
Edward Garcia
Mary Baliker
Collen Gerber
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
Equity strategies
Last updated: 10/01/2024GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We disaggregate data by demographics, including race, in every policy and program measured.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.