Rett's Roost

A Community of Healing and Hope

Ogunquit, ME   |
GuideStar Charity Check

Rett's Roost

EIN: 47-3723204


A source of hope and healing for families impacted by childhood cancer and child loss, offering holistic retreats and meaningful gatherings that create connection, while honoring the process of grief and the power of love. and love.

Ruling year info


Executive Director

Deana Cavan

Main address

22 Autumn River Ln

Ogunquit, ME 03907 USA

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Subject area info

Family services

Youth services

Adult peer mentoring

Self-help groups

Special population support

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Population served info


People with diseases and illnesses

NTEE code info

Health Support Services (E60)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms



Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Each year in the U.S., families of more than 15,000 children age 0-19 will hear the words your child has cancer. Across all ages, ethnic groups, and socioeconomic statuses, this disease remains the number one cause of death by disease in children. In the last 40 years, the overall survival rate for childhood cancer has increased from 10% to over 85%. But for rarer childhood cancers, the survival rate remains much lower. Furthermore, the number of diagnosed cases annually has not declined in nearly 20 years. Childhood cancer treatment is incredibly brutal--the anxiety and mental anguish during and following treatment palpable. Losing your child, despite your deepest hope and best efforts to save them is a traumatic event in a family's life, one that can easily lead to complicated mental and physical health issues, relationship and work strain, and the loss of a sense of self or purpose. Rett's Roost's vision is to cultivate a community of healing and hope for these families.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Positively Healing Retreats

Our free retreats are open to families that have a child transitioning off of cancer treatment and those that have lost a child to cancer. We create a peaceful, joyful, empathetic space for families to relax and honor themselves and their child after months or years of hospitalization sometimes ending in death. We focus on mindful, positive living through healthy bodies, community, and spiritual openness (whatever that may be for you).

Population(s) Served
People with diseases and illnesses

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Rett's Roost offers thoughtful and therapeutic programs that connect parents and children with others that have been through similar traumatic and tragic circumstances--caretaking a child through cancer treatment, and in many cases, losing that child to their disease. One of our goals is to give children with cancer and their families a joyful respite after months or years of hospital visits and worry. Our second priority is to bring grieving families together in an effort to reduce the overwhelming feeling of loneliness that accompanies child loss. We've found that the connections made through our immersive and intimate programs are lasting and essential.

At our free healing retreats and joyful social gatherings, we honor one another's difficult journeys and the children that have suffered, and offer therapeutic ways to cope through moments of stress, grief, and isolation. We encourage holistic healing of the body, mind, and spirit through integrative therapies, psychosocial support, movement, massage, energy work, creativity, and mindfulness toward the natural and spiritual world. All aspects of Rett's Roost programs are based on equitable, inclusive, nondenominational principles that ensure families have a safe, relaxing, and healing experience.

Retts Roost achieves its mission and strives for their vision by:

Providing free, healing retreats; joyful social gatherings; end-of-life support; and virtual services for families affected by cancer and child loss.
Offering integrative therapeutic support for the whole family, including siblings and parents.
Creating a community of families with similar tragic stories of cancer and loss.
Encouraging healing of the mind, body, and spirit through various integrative therapies, peer connections, self-care habits, body and energy work, and mindfulness toward the natural and spiritual world.
Advocating and increasing public awareness about the prevalence, treatment, and research of all types of childhood cancer.
Collaborating with existing nonprofit organizations to increase overall effectiveness in supporting families impacted by childhood cancer and child loss.
Cultivating a sustainable organization through donor and grantor relationships and community business support.
Carrying forth the above functions of Retts Roost without discriminating against any person or organization because of race, age, nationality, gender, sexual orientation, or religious belief.


Rett's Roost
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022 info

SOURCE: IRS Form 990


Average of 16.22 over 7 years

Months of cash in 2022 info

SOURCE: IRS Form 990


Average of 1.9 over 7 years

Fringe rate in 2022 info

SOURCE: IRS Form 990


Average of 1% over 7 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

Rett's Roost

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

Rett's Roost

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Rett's Roost

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of Rett's Roost’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Business model indicators

Profitability info 2022
Unrestricted surplus (deficit) before depreciation $56,405
As % of expenses 31.5%
Unrestricted surplus (deficit) after depreciation $52,590
As % of expenses 28.7%
Revenue composition info
Total revenue (unrestricted & restricted) $235,641
Total revenue, % change over prior year 0.0%
Program services revenue 0.0%
Membership dues 0.0%
Investment income 0.0%
Government grants 0.0%
All other grants and contributions 101.7%
Other revenue -1.7%
Expense composition info
Total expenses before depreciation $179,236
Total expenses, % change over prior year 0.0%
Personnel 32.8%
Professional fees 3.6%
Occupancy 0.0%
Interest 0.0%
Pass-through 0.0%
All other expenses 63.6%
Full cost components (estimated) info 2022
Total expenses (after depreciation) $183,051
One month of savings $14,936
Debt principal payment $0
Fixed asset additions $0
Total full costs (estimated) $197,987

Capital structure indicators

Liquidity info 2022
Months of cash 13.4
Months of cash and investments 13.4
Months of estimated liquid unrestricted net assets 13.3
Balance sheet composition info 2022
Cash $199,959
Investments $0
Receivables $0
Gross land, buildings, equipment (LBE) $19,075
Accumulated depreciation (as a % of LBE) 91.2%
Liabilities (as a % of assets) 0.9%
Unrestricted net assets $0
Temporarily restricted net assets N/A
Permanently restricted net assets N/A
Total restricted net assets $0
Total net assets $200,137

Key data checks

Key data checks info 2022
Material data errors No


The people, governance practices, and partners that make the organization tick.

Form 1023/1024 is not available for this organization

Executive Director

Deana Cavan

Deana always considered herself a caregiver, first to the earth in her environmental studies in college, and then to her students as a dedicated yoga teacher. But when she first held Rett in her arms and continued to nurture him through his unyielding battle with cancer, she realized her life’s true calling. Rett’s Roost has become a positive outlet for the grief of losing her precious boy. With her impeccable organizational skills, efficient time & task management, drive to do good, and deep compassion for families like hers, she has created something powerful and sustainable to honor her son.

Number of employees

Source: IRS Form 990

Rett's Roost

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

Rett's Roost

Board of directors
as of 02/19/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Kathryn McCary

American Cancer Society

Term: 2022 - 2025

James P Cavan

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Maureen Dowst

Maureen Dowst CPA

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David Sullivan


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Organizational demographics

SOURCE: Self-reported; last updated 3/1/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.


The organization's leader identifies as:

Race & ethnicity
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data


No data