Lcc Foundation Inc
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Lcc Foundation Inc
EIN: 88-1908603
as of September 2024
as of September 09, 2024
Mission
The LCC Foundation’s MISSION is to help families across the United States and beyond diagnosed with Leukoencephalopathy with Brain Calcifications and Cysts (LCC) by giving them the resources they need to fight this rare and devastating disease. We advocate funding research efforts that will identify new treatments, therapies, and ultimately a cure for LCC. We seek to raise awareness of LCC thus increasing the probability of earlier diagnosis and treatment.
Ruling year
2022
Founding President
Ashley Dike
Co-Founder
Danny Dike
Main address
105 Eckstein Ln
Lake St Louis, MO 63367 USA
EIN
88-1908603
Diseases and conditions
Population served
People with diseases and illnesses
People with disabilities
NTEE code
Fund Raising and/or Fund Distribution (G12)
IRS subsection
501(c)(3) Public Charity
IRS filing requirement
This organization is required to file an IRS Form 990-N.
Tax forms
Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Medical Research and Clinical Trial Funding
Currently, the LCC Foundation's goal is to raise funds for an upcoming clinical trial for all patients of LCC/Labrune Syndrome (leukoencephalopathy with brain calcifications and cysts). We aim to fund not only the medical research but also aid in the cost of travel and accommodations while undergoing this trial.
Where we work
Financials
Financial data
Lcc Foundation Inc
Revenue & expensesFiscal Year: 2024
SOURCE: Self-reported by organization
| Revenue | |
|---|---|
| Contributions, Grants, Gifts | $33,907 |
| Program Services | $0 |
| Membership Dues | $0 |
| Special Events | $0 |
| Other Revenue | $0 |
| Total Revenue | $33,907 |
| Expenses | |
|---|---|
| Program Services | $1,250 |
| Administration | $1,410 |
| Fundraising | $0 |
| Payments to Affiliates | $0 |
| Other Expenses | $0 |
| Total Expenses | $2,660 |
Lcc Foundation Inc
Balance sheetFiscal Year: 2024
SOURCE: Self-reported by organization
| Assets | |
|---|---|
| Total Assets | $33,907 |
| Liabilities | |
|---|---|
| Total Liabilities | $0 |
| Fund balance (EOY) | |
|---|---|
| Net Assets | $33,907 |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
Founding President
Ashley Dike
Hi, I’m Ashley, the founding President of The LCC Foundation, but my most important role is Mom to my 4 boys. I also care for our third-born son, Ben, who has been diagnosed with the ultra-rare progressive disorder of Leukoencephalopathy with brain calcifications and cysts (LCC).
Co-Founder
Danny Dike
There are no officers, directors or key employees recorded for this organization
There are no highest paid employees recorded for this organization.
Lcc Foundation Inc
Board of directorsas of 09/30/2024
Board of directors data
Ashley Dike
The LCC Foundation
Danny Dike
The LCC Foundation
Jim Garland
The LCC Foundation
Organizational demographics
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Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
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