CHROMOSOME DISORDER OUTREACH INC

Our goals encompass the following: To raise awareness, provide support and resources to affected individuals and their families through our personalized networking programs and social media platforms. To advocate for better medical research and treatments, and foster a sense of community among those impacted by these conditions. And further through our Ask the Doctor consulting programs work towards improving diagnosis and access to care, while collaborating with researchers, medical professionals, and policymakers in an effort to drive positive change.

1. **Raise Awareness:** Develop targeted awareness campaigns using social media, traditional media, and partnerships with influencers, medical professionals, and patient advocates to educate the public about the disorder's impact.

2. **Provide Support Services:** Offer genetic consulting services, educational resources, and helplines to assist patients, families, and caregivers in coping with the challenges of rare chromosome and gene mutation disorders.

3. **Advocacy and Policy Change:** Advocate for policy changes at local, regional, and national levels to improve research funding, access to treatments, insurance coverage, and inclusion of these rare disorders in public health agendas.

4. **Patient Registry:** patient registry established 25+ years ago which collects and shares information about patients, which can aid researchers, doctors, and patients in better understanding the rare disorder.

5. **Collaboration with Medical Professionals:** Work closely with medical professionals to enhance their understanding of the disorder and facilitate timely and accurate diagnoses.

6. **Community Building:** Organize events, workshops, and conferences to create a sense of community among patients, families, and caregivers, fostering a supportive network.

7. **Public and Private Funding:** Seek grants, donations, and sponsorships from foundations, corporations, and individuals who are passionate about rare disorders.

8. **Digital Engagement:** Utilize websites, social media, and online forums to connect patients, caregivers, and medical professionals, sharing information, resources, and experiences.

9. **Patient Education:** Develop educational materials to empower patients with knowledge about their condition, treatment options, and self-care.

10. **Global Collaboration:** Collaborate with international rare disorder organizations to share best practices, information, and resources.

1. **Expertise and Knowledge:** All CDO's board members are parents of children with rare chromosome disorders and as such possess a deep understanding of the challenges faced by affected individuals and their families. Our medical geneticists are experts in rare chromosome and gene mutation disorders and their medical aspects as well as the broader landscape of medical research and treatment options.

2. **Network and Partnerships:** We continually work to establish connections with medical professionals, researchers, patient advocates, and others to collaborate on research, treatments, and support initiatives.

3. **Resource Development:** CDO develops and disseminates educational materials, informational resources, and tools to empower patients, families, and caregivers with accurate information about rare chromosome and gene mutation disorders.

4. **Support Services:** CDO offers a range of support services, including a family helpline, personalized networking programs, genetic consulting services and online communities, all which provide emotional and informational support to individuals affected by these rare disorders.

5. **Awareness Campaigns:** CDO coordinates an annual awareness campaign using social media, events to raise public awareness about rare chromosome and gene mutation disorders impact and challenges.

6. **Patient Advocacy:** We actively advocate for patients' rights, ensuring access to proper medical care and treatment options.

7. **Crisis Response:** CDO is equipped to provide immediate support and resources during crisis situations, offering guidance and assistance to affected individuals and their families.

8. **Community Building:** CDO offers a sense of community among patients, caregivers, and medical professionals through our networking programs and online platforms.