BRONZE2023

PHEO ALLIANCE

We are Pheo Para Phearless

aka Pheo Para Alliance   |   Alexandria, VA   |  www.pheopara.org
GuideStar Charity Check

PHEO ALLIANCE

EIN: 26-1510652

Mission

The mission of the Pheo Para Alliance is to invest in research to accelerate treatments and cures while empowering patients, their families, and medical professionals through advocacy, education and a global community of support.

Ruling year info

2009

Executive Director

Stephanie Alband

Main address

Pheo Para Alliance 3301 Richmond Hwy #1257

Alexandria, VA 22305 USA

Show more contact info

EIN

26-1510652

Subject area info

Diseases and conditions

Population served info

People with diseases and illnesses

NTEE code info

Alliance/Advocacy Organizations (G01)

Fund Raising and/or Fund Distribution (G12)

Cancer Research (H30)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Education

The Pheo Para Alliance is a central source of information for the pheochromocytoma and paraganglioma community in the United States and around the world. The Alliance provides critical educational information about diagnosis and treatment of these rare neuroendocrine cancers to patients, their families, caregivers, and healthcare providers through its website, email, online forums and educational conferences.

Population(s) Served
People with diseases and illnesses

Where we work

Videos

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.

  • Who are the people you serve with your mission?

    In late 2021, we initiated a patient survey to identify needs of the patient community. The results will be used to identify strategies and initiatives to implement through the organization.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, Staff find it hard to prioritize feedback collection and review due to lack of time

Financials

PHEO ALLIANCE
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2021 info

SOURCE: IRS Form 990

36.24

Average of 14.05 over 10 years

Months of cash in 2021 info

SOURCE: IRS Form 990

29.9

Average of 26.7 over 10 years

Fringe rate in 2021 info

SOURCE: IRS Form 990

0%

Average of 0% over 10 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

Source: IRS Form 990 info

PHEO ALLIANCE

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

Fiscal year ending: cloud_download Download Data

PHEO ALLIANCE

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

PHEO ALLIANCE

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990

This snapshot of PHEO ALLIANCE’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Fiscal year: Jan 01 - Dec 31 picture_as_pdf View full report cloud_downloadDownload data

Business model indicators

Profitability info 2017 2018 2019 2020 2021
Unrestricted surplus (deficit) before depreciation -$256,226 $35,618 -$82,186 $16,669 $35,500
As % of expenses -92.1% 14.4% -43.5% 10.8% 23.4%
Unrestricted surplus (deficit) after depreciation -$256,226 $35,618 -$82,186 $16,669 $35,500
As % of expenses -92.1% 14.4% -43.5% 10.8% 23.4%
Revenue composition info
Total revenue (unrestricted & restricted) $21,993 $282,601 $106,635 $171,708 $187,139
Total revenue, % change over prior year -26.2% 1185.0% -62.3% 61.0% 9.0%
Program services revenue 0.1% 0.0% 0.0% 0.0% 0.0%
Membership dues 0.0% 0.0% 0.0% 0.0% 0.0%
Investment income 2.0% 0.1% 0.3% 0.0% 0.0%
Government grants 0.0% 0.0% 0.0% 0.0% 0.0%
All other grants and contributions 97.9% 99.9% 99.7% 100.0% 100.0%
Other revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Expense composition info
Total expenses before depreciation $278,219 $246,983 $188,821 $155,039 $151,639
Total expenses, % change over prior year 24.2% -11.2% -23.5% -17.9% -2.2%
Personnel 3.0% 4.0% 41.5% 50.9% 45.5%
Professional fees 39.9% 20.4% 13.8% 13.4% 16.0%
Occupancy 0.0% 0.0% 0.0% 0.0% 0.0%
Interest 0.0% 0.0% 0.0% 0.0% 0.0%
Pass-through 49.1% 37.2% 19.7% 24.0% 24.6%
All other expenses 8.0% 38.4% 25.0% 11.7% 13.9%
Full cost components (estimated) info 2017 2018 2019 2020 2021
Total expenses (after depreciation) $278,219 $246,983 $188,821 $155,039 $151,639
One month of savings $23,185 $20,582 $15,735 $12,920 $12,637
Debt principal payment $0 $0 $0 $0 $0
Fixed asset additions $0 $0 $0 $0 $0
Total full costs (estimated) $301,404 $267,565 $204,556 $167,959 $164,276

Capital structure indicators

Liquidity info 2017 2018 2019 2020 2021
Months of cash 17.8 21.1 23.2 27.1 29.9
Months of cash and investments 17.8 21.1 23.2 27.1 29.9
Months of estimated liquid unrestricted net assets 16.8 20.6 21.7 27.8 31.2
Balance sheet composition info 2017 2018 2019 2020 2021
Cash $412,295 $433,722 $365,232 $350,665 $378,050
Investments $0 $0 $0 $0 $0
Receivables $0 $0 $0 $4,980 $13,375
Gross land, buildings, equipment (LBE) $0 $0 $0 $0 $0
Accumulated depreciation (as a % of LBE) 0.0% 0.0% 0.0% 0.0% 0.0%
Liabilities (as a % of assets) 5.8% 2.3% 9.7% 2.8% 2.7%
Unrestricted net assets $388,524 $424,142 $341,956 $358,625 $394,125
Temporarily restricted net assets $0 $0 N/A N/A N/A
Permanently restricted net assets $0 $0 N/A N/A N/A
Total restricted net assets $0 $0 $0 $0 $0
Total net assets $388,524 $424,142 $341,956 $358,625 $394,125

Key data checks

Key data checks info 2017 2018 2019 2020 2021
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Letter of Determination
Form 1023/1024 is not available for this organization

Executive Director

Stephanie Alband

Number of employees

Source: IRS Form 990

PHEO ALLIANCE

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

PHEO ALLIANCE

Board of directors
as of 02/24/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Linda Rose-Krasnor

Pheo Para Alliance

Term: 2022 - 2024

Teena Price

Pheo Para Alliance

Lisa Anderson

Pheo Para Alliance

Michael L. Campbell

Pheo Para Alliance

Eli Soto

Pheo Para Alliance

Heather Steinman

Pheo Para Alliance

Phil Cadorette

Pheo Para Alliance

Shonna Snyder

Pheo Para Alliance

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 10/12/2021
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Decline to state
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 10/12/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.