GOLD2023

National Association for Continence

There is No Shame in Being Human

aka NAFC   |   Charleston, SC   |  www.nafc.org
GuideStar Charity Check

National Association for Continence

EIN: 57-0767383


Mission

The mission of NAFC is to be the leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for bladder and bowel dysfunction. Our key objectives are to destigmatize incontinence, promote preventive measures, motivate individuals to seek treatment, and provide collaborative advocacy and service for those who are affected by these problems. Our constituents are not just people who are dealing with incontinence (whether personally or as a caregiver), but real people with lives to live, places to go, errands to run, families to take care of.

Ruling year info

1984

Principal Officer

Ms. Sarah Jenkins

Main address

PO Box 1019

Charleston, SC 29402 USA

Show more contact info

EIN

57-0767383

Subject area info

Health

Population served info

Adults

NTEE code info

Alliance/Advocacy Organizations (E01)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Communication

Blog

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Hispanic Outreach

NAFC publishes and distributes culturally sensitive, gender-specific educational materials to improve the health literacy of Spanish speakers on bladder and bowel control, voiding problems associated with enlarged prostate in men, pelvic organ prolapse in women, and related pelvic floor dysfunction.

Population(s) Served
Caregivers
Parents
Widows and widowers

Designation of COEs in Continence Care based on meeting pre-determined, patient-centered requirements, including a survey of the providers' patients and a 2-day site visit

Population(s) Served

Use of social media to engage consumers and elevate health literary

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of list subscribers

This metric is no longer tracked.
Totals By Year
Related Program

Bladder Health Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of research or policy analysis products developed, e.g., reports, briefs

This metric is no longer tracked.
Totals By Year
Related Program

Bladder Health Awareness

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context Notes

NAFC conducts annual research projects with our patient and caregiver community and regularly shares the results through online campaigns. The results of our research largely shape our offerings.

Number of website sessions

This metric is no longer tracked.
Totals By Year
Related Program

Bladder Health Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of website pageviews

This metric is no longer tracked.
Totals By Year
Related Program

Bladder Health Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of people on the organization's email list

This metric is no longer tracked.
Totals By Year
Related Program

Bladder Health Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

National Association for Continence
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2022 info

SOURCE: IRS Form 990

2.57

Average of 1.31 over 10 years

Months of cash in 2022 info

SOURCE: IRS Form 990

6

Average of 3.5 over 10 years

Fringe rate in 2022 info

SOURCE: IRS Form 990

15%

Average of 16% over 10 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

National Association for Continence

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

National Association for Continence

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

National Association for Continence

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

This snapshot of National Association for Continence’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

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Business model indicators

Profitability info 2018 2019 2020 2021 2022
Unrestricted surplus (deficit) before depreciation $61,618 $43,847 $14,603 $197,314 $17,518
As % of expenses 21.9% 14.6% 5.4% 65.1% 4.8%
Unrestricted surplus (deficit) after depreciation $36,899 $19,133 -$14,043 $167,483 $17,518
As % of expenses 12.1% 5.9% -4.7% 50.3% 4.8%
Revenue composition info
Total revenue (unrestricted & restricted) $342,746 $343,288 $286,676 $500,284 $383,743
Total revenue, % change over prior year 0.7% 0.2% -16.5% 74.5% -23.3%
Program services revenue 0.2% 0.0% 0.0% 0.0% 0.0%
Membership dues 33.8% 1.7% 2.6% 1.4% 1.2%
Investment income 0.0% 0.0% 0.0% 0.0% 0.0%
Government grants 0.0% 0.0% 0.0% 8.3% 0.0%
All other grants and contributions 66.1% 98.3% 97.4% 90.2% 98.7%
Other revenue 0.0% 0.0% 0.0% 0.0% 0.0%
Expense composition info
Total expenses before depreciation $281,128 $299,441 $272,073 $302,970 $366,225
Total expenses, % change over prior year -1.5% 6.5% -9.1% 11.4% 20.9%
Personnel 64.2% 58.8% 69.2% 65.0% 58.0%
Professional fees 8.6% 8.1% 9.8% 5.2% 8.3%
Occupancy 3.6% 3.4% 3.9% 3.6% 3.0%
Interest 0.0% 0.0% 0.0% 0.0% 0.5%
Pass-through 0.0% 0.0% 0.0% 0.0% 0.0%
All other expenses 23.5% 29.7% 17.1% 26.2% 30.3%
Full cost components (estimated) info 2018 2019 2020 2021 2022
Total expenses (after depreciation) $305,847 $324,155 $300,719 $332,801 $366,225
One month of savings $23,427 $24,953 $22,673 $25,248 $30,519
Debt principal payment $0 $0 $0 $22,800 $0
Fixed asset additions $0 $0 $0 $0 $0
Total full costs (estimated) $329,274 $349,108 $323,392 $380,849 $396,744

Capital structure indicators

Liquidity info 2018 2019 2020 2021 2022
Months of cash 3.1 4.2 6.3 9.5 6.0
Months of cash and investments 3.1 4.2 6.3 9.5 6.0
Months of estimated liquid unrestricted net assets 5.2 5.7 5.6 11.7 10.3
Balance sheet composition info 2018 2019 2020 2021 2022
Cash $71,956 $104,985 $143,964 $239,016 $182,788
Investments $0 $0 $0 $0 $0
Receivables $77,650 $67,100 $50,751 $51,300 $72,625
Gross land, buildings, equipment (LBE) $0 $0 $0 $0 $0
Accumulated depreciation (as a % of LBE) 0.0% 0.0% 0.0% 0.0% 0.0%
Liabilities (as a % of assets) 42.6% 36.9% 50.1% 18.2% 18.5%
Unrestricted net assets $122,837 $141,970 $127,927 $295,410 $312,928
Temporarily restricted net assets $0 N/A N/A N/A N/A
Permanently restricted net assets $0 N/A N/A N/A N/A
Total restricted net assets $0 $0 $0 $0 $0
Total net assets $122,837 $141,970 $127,927 $295,410 $312,928

Key data checks

Key data checks info 2018 2019 2020 2021 2022
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

Principal Officer

Ms. Sarah Jenkins

Ms. Muller is NAFC's Executive Director. Prior to assuming this position, she worked as an independent consultant serving the healthcare industry. With 20 years of management experience, including international sales management and product management, she worked for companies in the realm of new product launches, strategic planning, and business development. Ms. Muller graduated magna cum laude from Duke University and received her MBA from the University of Virginia's Darden School of Graduate Business Administration.  She earned her PhD in health services research and administration at Virginia Commonwealth University.

Number of employees

Source: IRS Form 990

National Association for Continence

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
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Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

National Association for Continence

Highest paid employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of highest paid employee data for this organization

National Association for Continence

Board of directors
as of 09/25/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Andrew Stocking

Principle Business Enterprises

Lauren Sullivan

Gates Foundation

Eric Rovner

Medical University of South Carolina

Erin Dickes

MorganStanley

Lyndi Hirsch

Medisafe

Erin Foster

Medical University of South Carolina

Mara Holton

Anne Arundel Urology

Jessica McKinney

Mama, LLC

Synim Rivers

Horizon Therapies

Ara Sayabalian

Total Dry

Jennifer Miles-Thomas

Urology of Virinia

Organizational demographics

SOURCE: Self-reported; last updated 9/6/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data