THE FIBROID FOUNDATION
EIN: 46-3472114
Mission
Our mission is to be the premier global community of Fibroids patients.
At the heart of our mission is patient advocacy, and communicating the voice of "the patient" living with Uterine Fibroids.
We create and support initiatives that support treatment options and ultimately, a cure for fibroids.
We advocate for ongoing funding of patient sensitive fibroids research.
Our international platform focuses on erasing the 'Stigma of Silence' around women's menstrual issues, and minimizing treatment disparities with layered patient support.
Ruling year
2015
Principal Officer
Sateria Venable
Main address
1201 Seven Locks Rd Ste 360
Rockville, MD 20854 USA
EIN
46-3472114
Health
Population served
Women and girls
NTEE code
Alliance/Advocacy Organizations (E01)
IRS subsection
501(c)(3) Public Charity
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Tax forms
Communication
Programs and results
What we aim to solve
Most women will be diagnosed with uterine fibroids. Many women suffer with debilitating fibroid symptoms such as pelvic pain, heavy menstrual bleeding, infertility and pregnancy complication, to name a few. To date, there is no cure. Fibroids affect women of most ethnicities, with women of African descent being diagnosed at 80%. Fibroids account for half of hysterectomies performed annually in the United States. Recent research has shown that less than 20% of the hysterectomies performed annually in the United States due to uterine fibroids, are necessary. The negative stigma of menstruation is a global concern, and can be a barrier to seeking treatment. Other health disparities still plague communities of women seeking treatment.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Dartmouth UPFront Program
"The team, led by Dartmouth Institute Professor Glyn Elwyn, MD, PhD,
will incorporate evidence from an earlier PCORI-supported comparative effectiveness study on which treatments for uterine fibroids have the best results into a multi-component shared decision making strategy at Brigham and Women’s Hospital in Boston; Mayo Clinic in Rochester, Minnesota; Montefiore Medical Center, Bronx, New York; Barnes-Jewish Hospital, St. Louis, Missouri; and Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire."
Where we work
External reviews
Photos
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our goals are to advocate for our community of millions in the following areas:
1. Raise awareness.
2. Be a catalyst for less invasive and sustainable treatment options.
3. Be a resource for our community members - treatment, providers, pre/post-operative support.
4. Raise standards for medical care and access to that care.
5. Advocate for research and legislative funding.
6. Support H.R. 2007 - The Stephanie Tubbs Jones Fibroid Research and Education Act of 2021
7. Screen research efforts and participate in managing efforts that ensure patient-sensitivity.
8. Support science to find a cure
What are the organization's key strategies for making this happen?
We follow a 5-year strategic plan. The plan is carried out by our executive team, board of directors, chapters, community members and partners.
What are the organization's capabilities for doing this?
To date, we have over 29,000 followers with a social media presence in 48 countries. There global chapters led by Ambassadors.
We publish papers in medical journals and speak at medical conferences.
What have they accomplished so far and what's next?
We continue to expand our chapters globally and will continue to advocate for women who currently do not have access to trusted fibroid treatment specialists.
Financials
Financial documents
Download audited financialsRevenue vs. expenses: breakdown
Liquidity in 2020 info
Months of cash in 2020 info
Fringe rate in 2020 info
%
Funding sources info
Assets & liabilities info
THE FIBROID FOUNDATION
Revenue & expensesFiscal Year: Jul 01 - Jun 30
SOURCE: IRS Form 990
THE FIBROID FOUNDATION
Balance sheetFiscal Year: Jul 01 - Jun 30
SOURCE: IRS Form 990
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Fiscal Year: Jul 01 - Jun 30
SOURCE: IRS Form 990
This snapshot of THE FIBROID FOUNDATION’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.
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Business model indicators
| Profitability info | 2019 |
|---|---|
| Unrestricted surplus (deficit) before depreciation | $67,065 |
| As % of expenses | 36.6% |
| Unrestricted surplus (deficit) after depreciation | $67,065 |
| As % of expenses | 36.6% |
| Revenue composition info | |
|---|---|
| Total revenue (unrestricted & restricted) | $250,059 |
| Total revenue, % change over prior year | 0.0% |
| Program services revenue | 0.0% |
| Membership dues | 0.0% |
| Investment income | 0.0% |
| Government grants | 0.0% |
| All other grants and contributions | 100.0% |
| Other revenue | 0.0% |
| Expense composition info | |
|---|---|
| Total expenses before depreciation | $182,994 |
| Total expenses, % change over prior year | 0.0% |
| Personnel | 44.9% |
| Professional fees | 37.0% |
| Occupancy | 0.0% |
| Interest | 0.0% |
| Pass-through | 0.0% |
| All other expenses | 18.1% |
| Full cost components (estimated) info | 2019 |
|---|---|
| Total expenses (after depreciation) | $182,994 |
| One month of savings | $15,250 |
| Debt principal payment | $0 |
| Fixed asset additions | $0 |
| Total full costs (estimated) | $198,244 |
Capital structure indicators
| Liquidity info | 2019 |
|---|---|
| Months of cash | 5.0 |
| Months of cash and investments | 5.0 |
| Months of estimated liquid unrestricted net assets | 5.2 |
| Balance sheet composition info | 2019 |
|---|---|
| Cash | $76,716 |
| Investments | $0 |
| Receivables | $2,531 |
| Gross land, buildings, equipment (LBE) | $0 |
| Accumulated depreciation (as a % of LBE) | 0.0% |
| Liabilities (as a % of assets) | 0.0% |
| Unrestricted net assets | $79,247 |
| Temporarily restricted net assets | $0 |
| Permanently restricted net assets | $0 |
| Total restricted net assets | $0 |
| Total net assets | $79,247 |
Key data checks
| Key data checks info | 2019 |
|---|---|
| Material data errors | No |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
Principal Officer
Sateria Venable
Sateria is a patient advocate who was diagnosed with fibroids at the age of 26. After receiving the recommendation of a hysterectomy in her 20s, she was prompted to explore other options to manage her fibroid diagnosis. She began a quest for information, which led her to found The Fibroid Foundation.
Number of employees
Source: IRS Form 990
THE FIBROID FOUNDATION
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
There are no highest paid employees recorded for this organization.
THE FIBROID FOUNDATION
Board of directorsas of 01/19/2023
Board of directors data
Craig Mclendon
The Fibroid Foundation
Term: 2020 - 2023
Pamela Barnes
Jarrad Aguirre
Karen Baker
Tiara Batle
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
-
Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
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- Board of Directors data for 2023
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