SILVER2023

THE FIBROID FOUNDATION

We are the voice of women living with fibroids.

Rockville, MD   |  http://fibroidfoundation.org/
GuideStar Charity Check

THE FIBROID FOUNDATION

EIN: 46-3472114


Mission

Our mission is to be the premier global community of Fibroids patients.
At the heart of our mission is patient advocacy, and communicating the voice of "the patient" living with Uterine Fibroids.
We create and support initiatives that support treatment options and ultimately, a cure for fibroids.
We advocate for ongoing funding of patient sensitive fibroids research.
Our international platform focuses on erasing the 'Stigma of Silence' around women's menstrual issues, and minimizing treatment disparities with layered patient support.

Ruling year info

2015

Principal Officer

Sateria Venable

Main address

1201 Seven Locks Rd Ste 360

Rockville, MD 20854 USA

Show more contact info

EIN

46-3472114

Subject area info

Health

Population served info

Women and girls

NTEE code info

Alliance/Advocacy Organizations (E01)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Show Forms 990

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Most women will be diagnosed with uterine fibroids. Many women suffer with debilitating fibroid symptoms such as pelvic pain, heavy menstrual bleeding, infertility and pregnancy complication, to name a few. To date, there is no cure. Fibroids affect women of most ethnicities, with women of African descent being diagnosed at 80%. Fibroids account for half of hysterectomies performed annually in the United States. Recent research has shown that less than 20% of the hysterectomies performed annually in the United States due to uterine fibroids, are necessary. The negative stigma of menstruation is a global concern, and can be a barrier to seeking treatment. Other health disparities still plague communities of women seeking treatment.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Dartmouth UPFront Program

"The team, led by Dartmouth Institute Professor Glyn Elwyn, MD, PhD,
will incorporate evidence from an earlier PCORI-supported comparative effectiveness study on which treatments for uterine fibroids have the best results into a multi-component shared decision making strategy at Brigham and Women’s Hospital in Boston; Mayo Clinic in Rochester, Minnesota; Montefiore Medical Center, Bronx, New York; Barnes-Jewish Hospital, St. Louis, Missouri; and Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire."

Population(s) Served
Women

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our goals are to advocate for our community of millions in the following areas:
1. Raise awareness.
2. Be a catalyst for less invasive and sustainable treatment options.
3. Be a resource for our community members - treatment, providers, pre/post-operative support.
4. Raise standards for medical care and access to that care.
5. Advocate for research and legislative funding.
6. Support H.R. 2007 - The Stephanie Tubbs Jones Fibroid Research and Education Act of 2021
7. Screen research efforts and participate in managing efforts that ensure patient-sensitivity.
8. Support science to find a cure

We follow a 5-year strategic plan. The plan is carried out by our executive team, board of directors, chapters, community members and partners.

To date, we have over 29,000 followers with a social media presence in 48 countries. There global chapters led by Ambassadors.

We publish papers in medical journals and speak at medical conferences.

We continue to expand our chapters globally and will continue to advocate for women who currently do not have access to trusted fibroid treatment specialists.

Financials

THE FIBROID FOUNDATION
Fiscal year: Jul 01 - Jun 30

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2021 info

SOURCE: IRS Form 990

1.63

Average of 0.54 over 3 years

Months of cash in 2021 info

SOURCE: IRS Form 990

2.3

Average of 2.4 over 3 years

Fringe rate in 2021 info

SOURCE: IRS Form 990

7%

Average of 2% over 3 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

THE FIBROID FOUNDATION

Revenue & expenses

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

THE FIBROID FOUNDATION

Balance sheet

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

THE FIBROID FOUNDATION

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990 info

This snapshot of THE FIBROID FOUNDATION’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

Created in partnership with

Business model indicators

Profitability info 2019 2021
Unrestricted surplus (deficit) before depreciation $67,065 $92,559
As % of expenses 36.6% 19.6%
Unrestricted surplus (deficit) after depreciation $67,065 $92,559
As % of expenses 36.6% 19.6%
Revenue composition info
Total revenue (unrestricted & restricted) $250,059 $563,822
Total revenue, % change over prior year 0.0% 0.0%
Program services revenue 0.0% 0.0%
Membership dues 0.0% 0.0%
Investment income 0.0% 0.0%
Government grants 0.0% 0.0%
All other grants and contributions 100.0% 100.0%
Other revenue 0.0% 0.0%
Expense composition info
Total expenses before depreciation $182,994 $471,263
Total expenses, % change over prior year 0.0% 0.0%
Personnel 44.9% 46.3%
Professional fees 37.0% 42.4%
Occupancy 0.0% 0.0%
Interest 0.0% 0.0%
Pass-through 0.0% 0.0%
All other expenses 18.1% 11.3%
Full cost components (estimated) info 2019 2021
Total expenses (after depreciation) $182,994 $471,263
One month of savings $15,250 $39,272
Debt principal payment $0 $0
Fixed asset additions $0 $0
Total full costs (estimated) $198,244 $510,535

Capital structure indicators

Liquidity info 2019 2021
Months of cash 5.0 2.3
Months of cash and investments 5.0 2.3
Months of estimated liquid unrestricted net assets 5.2 1.2
Balance sheet composition info 2019 2021
Cash $76,716 $89,506
Investments $0 $0
Receivables $2,531 $30,100
Gross land, buildings, equipment (LBE) $0 $0
Accumulated depreciation (as a % of LBE) 0.0% 0.0%
Liabilities (as a % of assets) 0.0% 61.4%
Unrestricted net assets $79,247 $46,120
Temporarily restricted net assets $0 N/A
Permanently restricted net assets $0 N/A
Total restricted net assets $0 $0
Total net assets $79,247 $46,120

Key data checks

Key data checks info 2019 2021
Material data errors No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Letter of Determination is not available for this organization
Form 1023/1024 is not available for this organization

Principal Officer

Sateria Venable

Sateria is a patient advocate who was diagnosed with fibroids at the age of 26. After receiving the recommendation of a hysterectomy in her 20s, she was prompted to explore other options to manage her fibroid diagnosis. She began a quest for information, which led her to found The Fibroid Foundation.

Number of employees

Source: IRS Form 990

THE FIBROID FOUNDATION

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

THE FIBROID FOUNDATION

Board of directors
as of 01/10/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Craig Mclendon

The Fibroid Foundation

Term: 2020 - 2023

Pamela Barnes

Jarrad Aguirre

Karen Baker

Tiara Batle

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes

Organizational demographics

SOURCE: Self-reported; last updated 7/11/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Black/African American
Gender identity
Female, Not transgender
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data