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FPIES FOUNDATION

Educate. Support. Empower

aka The FPIES Foundation   |   Stewartville, MN   |  www.fpiesfoundation.org
GuideStar Charity Check

FPIES FOUNDATION

EIN: 45-4957980

Mission

The FPIES Foundation is dedicated to overcoming the challenges of Food Protein- Induced Enterocolitis Syndrome by offering tools for education, support, and advocacy to empower families and the medical community.

Ruling year info

2013

Co-director

Mrs. Joy Meyer

Co-Director

Mrs. Amanda LeFew

Main address

P.O.Box 304

Stewartville, MN 55976 USA

Show more contact info

EIN

45-4957980

Subject area info

Diseases and conditions

Pediatrics

Population served info

Children and youth

Adults

NTEE code info

Alliance/Advocacy Organizations (G01)

Allergy Related Diseases (G60)

Pediatrics (G98)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Tax forms

Show Forms 990

Communication

Blog

Programs and results

Reports and documents
2020 The FPIES Foundation 2014 "Introducing the Kids' Spot" -- Press Release 2013 The FPIES Foundation Launches a Global FPIES Patient Registry-- Press Release 2013 Second Anniversary-- Press Release 2013 Food Allergy Awareness Week and 501(c)3 Status-- Press Release 2012 First Anniversary and Launch of New Website-- Press Release 2011 Official Launch of The FPIES Foundation-- Press Release August 2011

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Global FPIES Patient Registry

The purpose of this Patient Insights Network (PIN) is to create a global database where doctors, researchers and families can connect to better understand food protein induced enterocolitis syndrome (FPIES). The goal is to spark improved diagnosis, management and treatment options, as well as the empowerment of patients and families through knowledge, connections and continued support. The FPIES Foundation is partnering with Invitae to bring you this registry, the first of its kind globally.

Registered families will have opportunities to participate in research and informational surveys and immediately see the results of those surveys. All patient information is kept confidential and FPIES families will always own their information and be able to opt-in or opt-out of participation.

Knowledge is power. By joining the FPIES Foundation PIN, you enhance knowledge of FPIES and provide information for doctors to research and understand this rare condition.

Population(s) Served
Children and youth
Adults

http://fpiesfoundation.org/find-a-healthcare-provider/

Population(s) Served
Children and youth
Adults

The FPIES Foundation respects the difficulties faced by a family affected by FPIES and dedicates itself to helping families living with FPIES today by supporting their multifaceted needs. It is Our Vision to provide tools for families & patients managing FPIES every day.
Your most powerful contribution to The FPIES Foundation is your family’s voice.

Population(s) Served
Children and youth
Adults

Where we work

Awards

Top-Rated Nonprofit Award 2020

GreatNonprofits

Certification 2019

HonCode - Health on the Net Foundation

Videos

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

    To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

Financials

FPIES FOUNDATION

Financial data

SOURCE: Self-reported by organization

FPIES FOUNDATION

Revenue & expenses

Fiscal Year: 2023

SOURCE: Self-reported by organization

Revenue
Contributions, Grants, Gifts $0
Program Services $0
Membership Dues $0
Special Events $0
Other Revenue $0
Total Revenue $16,471
Expenses
Program Services $23,866
Administration $2,045
Fundraising $0
Payments to Affiliates $0
Other Expenses $0
Total Expenses $27,479

FPIES FOUNDATION

Balance sheet

Fiscal Year: 2023

SOURCE: Self-reported by organization

Assets
Total Assets $33,171
Liabilities
Total Liabilities $33,171
Fund balance (EOY)
Net Assets $0

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Letter of Determination
Form 1023/1024 is not available for this organization

Co-director

Mrs. Joy Meyer

Joy Meyer lives in Minnesota with her husband and their 4 boys, their youngest has FPIES. Joy has an AAS degree in Nutrition and is a Registered Dietetic Technician (DTR) where she is responsible for providing normal and therapeutic medical nutrition therapy to patients as part of a multidisciplinary team; and collaborates with the clinical dietitians in activities such as patient education programs, development of materials, staff education, community outreach, etc. Joy’s past dietetics experiences includes both Assistant Food Service Director and Clinical Dietetics roles and includes chairing a nutrition subcommittee in clinical dietetics practice at the hospital where she currently is employed. Joy has a love for Nutrition and a passion for helping others.She is also a founding member of this organization and has served as a board member since its beginnings in August 2011.

Co-Director

Amanda LeFew

Amanda LeFew lives with her husband and 2 daughters in Massachusetts, both children have FPIES. Amanda is a board-certified music therapist and has additional training in Neurological Music Therapy (MT-BC NMT). She has experience in developing and implementing group/individual therapy sessions, as well as educational and large event planning. Additional experience includes developing and implementing in-services for volunteer and staff training as well as facilitating outreach for families of her client populations. She is also a founding member of this organization and has served as a board member since its beginnings in August 2011.

There are no officers, directors or key employees recorded for this organization

There are no highest paid employees recorded for this organization.

FPIES FOUNDATION

Board of directors
as of 04/01/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board co-chair

Mrs. Joy Meyer

The FPIES Foundation


Board co-chair

Ms. Amanda LeFew

The FPIES Foundation

Amanda LeFew

The FPIES Foundation

Joy Meyer

The FPIES Foundation

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 4/21/2021
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Decline to state

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 04/21/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Policies and processes
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.