GOLD2024

Lgmd Awareness Foundation Inc

"Together We Are Stronger"

Twin Lakes, WI   |  https://lgmd-info.org
GuideStar Charity Check

Lgmd Awareness Foundation Inc

EIN: 85-1504937


Mission

An advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as Limb Girdle Muscular Dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and public. By increasing awareness of and advocating for individuals living with Limb Girdle Muscular Dystrophy, we hope to assist in advancing the diagnosis, care, and treatment for individuals around the world. We coordinate a worldwide LGMD Awareness Day annually on September 30th.

Ruling year info

2020

President / Founder

Carol Abraham

Main address

638 Kennedy Dr

Twin Lakes, WI 53181 USA

Show more contact info

EIN

85-1504937

Subject area info

Diseases and conditions

Population served info

Children and youth

Adults

People with physical disabilities

Chronically ill people

NTEE code info

Alliance/Advocacy Organizations (G01)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Tax forms

Show Forms 990

Communication

Programs and results

What we aim to solve

This profile needs more info.

If it is your nonprofit, add a problem overview.

Login and update

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

LGMD Awareness Day

Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day is a collaborative effort to globally raise awareness of the rare neuromuscular diseases known as limb-girdle muscular dystrophy. LGMD Awareness Day is celebrated annually on September 30th. Our focus is to provide curated educational information and resources for the LGMD community and the public.

By increasing awareness of and advocating for individuals living with LGMD, we hope individuals living with this progressively debilitating disease will have an easier time accessing diagnosis, care, and treatment around the world.

Population(s) Served
People with physical disabilities
Chronically ill people
Age groups

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Financials

Lgmd Awareness Foundation Inc
Fiscal year: Jan 01 - Dec 31

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Financial data

SOURCE: IRS Form 990

Lgmd Awareness Foundation Inc

Revenue & expenses

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

Lgmd Awareness Foundation Inc

Balance sheet

Fiscal Year: Jan 01 - Dec 31

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

President / Founder

Carol Abraham

Lgmd Awareness Foundation Inc

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

Lgmd Awareness Foundation Inc

Board of directors
as of 06/20/2024
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Carol Abraham

LGMD Awareness Foundation, Inc.

Term: 2020 -

Carol Abraham

Karen Cole

Yumi Shim

Rebecca Gregg

Organizational demographics

SOURCE: Self-reported; last updated 6/20/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability