Parkinson Voice Project
Speak With INTENT
Parkinson Voice Project
EIN: 20-3940037
as of November 2023
as of November 13, 2023
Mission
The mission Parkinson Voice Project is to help people diagnosed with Parkinson’s and other neurological disorders regain and retain their speech and swallowing.
Notes from the nonprofit
Please visit www.ParkinsonVoiceProject.org
Ruling year
2010
Founder & CEO
Mrs. Samantha Elandary
Main address
646 North Coit Road, Suite 2250
Richardson, TX 75080 USA
Formerly known as
The Texas Voice Project for Parkinson Disease, Inc.
EIN
20-3940037
Graduate and professional education
Health care quality
Health care access
Patient-centered care
Health care clinics
Population served
Adults
Caregivers
People with physical disabilities
People with other disabilities
Chronically ill people
NTEE code
Rehabilitative Medical Services (E50)
Neurology, Neuroscience (G96)
IRS subsection
501(c)(3) Public Charity
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Tax forms
Communication
Programs and results
Reports and documents
Download other documentsWhat we aim to solve
Nine out of ten people with Parkinson's will struggle with speaking, and aspiration pneumonia caused by swallowing complications accounts for 70% of the mortality rate in this patient population. Parkinson Voice Project has developed a highly effective speech therapy program that improves speech and communication and minimizes swallowing issues. Our organization aims to make our treatment accessible to people with Parkinson's worldwide.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
SPEAK OUT! Therapy Program
Nine out of 10 people with Parkinson's develop a weak voice with soft speech that can lead to life-threatening swallowing complications.
Parkinson Voice Project has developed an effective and clinically proven speech treatment for people with Parkinson's called "SPEAK OUT! Therapy." The organization treats patients throughout Texas and trains speech-language pathologists and graduate students worldwide.
SPEAK OUT! Therapy combines education for the patient and family, individual speech therapy, weekly speech and singing groups, daily home practice, and six-month follow-ups. The goal is to help these patients regain and retain their speech and swallowing abilities for a lifetime.
SPEAK OUT! Grant Program
Parkinson Voice Project’s SPEAK OUT! Grant Program aims to make our highly effective, clinically proven SPEAK OUT! Therapy Program accessible to more people diagnosed with Parkinson’s and related neurological disorders worldwide. Universities, hospitals, private practices, outpatient clinics, facilities, and other rehabilitation organizations are encouraged to apply for a training grant each year.
Grant awards include free SPEAK OUT! training for speech-language pathologists and graduate students. Select clinics also receive therapy workbooks, as well as funding to help support their therapy groups and research.
Where we work
Affiliations & memberships
Approved CE Provider with the American Speech-Language-Hearing Association 2017
External reviews
Photos
Our results
How does this organization measure their results? It's a hard question but an important one.
Cumulative number per fiscal year of speech-language pathologists trained in Parkinson Voice Project's speech therapy program.
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, Caregivers, People with disabilities, Veterans, Adults
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
In 2017, 572 speech-language pathologists had been trained in Parkinson Voice Project's speech therapy protocol. By 2022, the number increased to 5131.
Cumulative total per fiscal year of people with Parkinson's who have completed Parkinson Voice Project's speech therapy program.
This metric is no longer tracked.Totals By Year
Population(s) Served
People with physical disabilities, Chronically ill people, People with other disabilities, Veterans, Adults
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
In 2017, 1,813 people with Parkinson's had completed SPEAK OUT! By 2020, 11,046 people with Parkinson's had completed SPEAK OUT!
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Parkinson Voice Project's vision is to make our clinically-proven speech therapy program (SPEAK OUT!) accessible to people with Parkinson's worldwide. By receiving quality speech treatment, people with Parkinson's and related neurological disorders can regain and retain their speech and swallowing.
What are the organization's key strategies for making this happen?
1. Parkinson Voice Project runs a speech therapy clinic that treats people with Parkinson's who live in Texas either at its Richardson location or online through "teletherapy."
2. Parkinson Voice Project has developed a 10-hour continuing education course for speech-language pathologists and graduate students to teach them about Parkinson's and to train them in our clinically proven therapy approach.
3. Parkinson Voice Project is replicating our program across the globe by awarding grants annually to universities, hospitals, and speech therapy clinics that want to bring our SPEAK OUT! Program to their Parkinson's communities. The grants provide free therapy supplies and training.
4. Parkinson Voice Project is raising $20,000,000 to fund its speech therapy clinic for five years and to establish 50 "SPEAK OUT! Therapy & Research Centers" across the United States-- one in every state. Once these Centers are established, every person with Parkinson's in the U.S. will have access to our clinically proven treatment. The Centers will be housed within university speech therapy clinics that will commit to making Parkinson's a priority and will conduct research AND provide SPEAK OUT! Graduate students at every institution will receive specialized training in treating Parkinson's so that future speech-language pathologists will have the knowledge and skills necessary to effectively treat this patient population.
What are the organization's capabilities for doing this?
Parkinson Voice Project is already fulfilling goals 1 through 3. Goal #4 (establishing all 50 "Therapy & Research Centers" across the U.S.) will be met once the $20,000,000 is secured. This project will be easily executed as it is an extension of our current "SPEAK OUT! Grant Program" which was implemented in 2018 and has successfully increased access to quality treatment for the Parkinson's population.
Parkinson Voice Project is raising $20,000,000 to launch Centers in 50 states. These funds will cover the cost of Parkinson Voice Project's clinic, the grant program, and the 50 Centers for five years. During those same five years, all donations received will be deposited into Parkinson Voice Project's Endowment Fund to sustain the organization and its programs for the future.
Parkinson Voice Project has never had any debt.
What have they accomplished so far and what's next?
In 2023, Parkinson Voice Project established Centers in 16 states: Arizona, Arkansas, Colorado, Connecticut, Florida, Georgia, Massachusetts, Michigan, Missouri, Nebraska, New York, North Dakota, Pennsylvania, Utah, Washington, and West Virginia.
To watch 2023 our "SPEAK OUT! Therapy & Research Centers and Grants Recipients Announcement," visit:
https://www.youtube.com/watch?v=qH0XqovggVc
As of September 2023, $13,800,808.55 of $20,00,000 has been raised.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
Financial documents
Download audited financialsRevenue vs. expenses: breakdown
Liquidity in 2022 info
29.95
Months of cash in 2022 info
8.1
Fringe rate in 2022 info
13%
Funding sources info
Assets & liabilities info
Financial data
Parkinson Voice Project
Balance sheetFiscal Year: Jul 01 - Jun 30
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Fiscal Year: Jul 01 - Jun 30
This snapshot of Parkinson Voice Project’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.
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Business model indicators
| Profitability info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Unrestricted surplus (deficit) before depreciation | $492,836 | $700,135 | $743,184 | $1,282,252 | $365,069 |
| As % of expenses | 23.1% | 30.2% | 35.5% | 75.0% | 17.0% |
| Unrestricted surplus (deficit) after depreciation | $344,211 | $556,709 | $588,265 | $1,147,035 | $232,778 |
| As % of expenses | 15.1% | 22.6% | 26.2% | 62.2% | 10.2% |
| Revenue composition info | |||||
|---|---|---|---|---|---|
| Total revenue (unrestricted & restricted) | $3,215,737 | $2,715,739 | $3,012,652 | $2,805,308 | $10,580,198 |
| Total revenue, % change over prior year | 64.2% | -15.5% | 10.9% | -6.9% | 277.1% |
| Program services revenue | 3.2% | 5.3% | 7.7% | 10.9% | 3.0% |
| Membership dues | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Investment income | 0.9% | 2.5% | 1.7% | 1.6% | 1.4% |
| Government grants | 0.0% | 0.0% | 0.0% | 7.0% | 0.0% |
| All other grants and contributions | 95.6% | 91.0% | 90.0% | 70.8% | 95.4% |
| Other revenue | 0.3% | 1.2% | 0.6% | 9.7% | 0.1% |
| Expense composition info | |||||
|---|---|---|---|---|---|
| Total expenses before depreciation | $2,130,890 | $2,316,363 | $2,094,356 | $1,709,682 | $2,145,972 |
| Total expenses, % change over prior year | 29.7% | 8.7% | -9.6% | -18.4% | 25.5% |
| Personnel | 49.7% | 49.7% | 50.3% | 56.9% | 56.4% |
| Professional fees | 4.0% | 5.8% | 7.6% | 6.9% | 7.8% |
| Occupancy | 9.2% | 8.5% | 8.9% | 9.6% | 8.5% |
| Interest | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Pass-through | 0.0% | 3.1% | 4.6% | 1.1% | 0.5% |
| All other expenses | 37.2% | 32.9% | 28.6% | 25.6% | 26.8% |
| Full cost components (estimated) info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Total expenses (after depreciation) | $2,279,515 | $2,459,789 | $2,249,275 | $1,844,899 | $2,278,263 |
| One month of savings | $177,574 | $193,030 | $174,530 | $142,474 | $178,831 |
| Debt principal payment | $4,550 | $4,879 | $4,781 | $0 | $0 |
| Fixed asset additions | $0 | $0 | $0 | $0 | $0 |
| Total full costs (estimated) | $2,461,639 | $2,657,698 | $2,428,586 | $1,987,373 | $2,457,094 |
Capital structure indicators
| Liquidity info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Months of cash | 10.6 | 11.1 | 7.4 | 8.7 | 8.1 |
| Months of cash and investments | 14.1 | 15.3 | 19.1 | 34.9 | 34.7 |
| Months of estimated liquid unrestricted net assets | 5.8 | 8.7 | 13.3 | 25.0 | 21.9 |
| Balance sheet composition info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Cash | $1,877,333 | $2,135,405 | $1,292,183 | $1,244,587 | $1,456,526 |
| Investments | $631,941 | $820,782 | $2,047,091 | $3,734,342 | $4,746,890 |
| Receivables | $452,587 | $354,020 | $624,500 | $349,311 | $6,839,446 |
| Gross land, buildings, equipment (LBE) | $1,446,669 | $1,484,989 | $1,590,859 | $1,629,854 | $1,515,189 |
| Accumulated depreciation (as a % of LBE) | 31.7% | 40.5% | 47.6% | 54.7% | 59.4% |
| Liabilities (as a % of assets) | 5.1% | 4.7% | 2.9% | 2.6% | 1.5% |
| Unrestricted net assets | $2,002,599 | $2,559,308 | $3,147,573 | $4,294,608 | $4,527,386 |
| Temporarily restricted net assets | $790,779 | $482,052 | N/A | N/A | N/A |
| Permanently restricted net assets | $1,000,000 | $1,000,000 | N/A | N/A | N/A |
| Total restricted net assets | $1,790,779 | $1,482,052 | $1,579,320 | $1,652,545 | $8,954,197 |
| Total net assets | $3,793,378 | $4,041,360 | $4,726,893 | $5,947,153 | $13,481,583 |
Key data checks
| Key data checks info | 2018 | 2019 | 2020 | 2021 | 2022 |
|---|---|---|---|---|---|
| Material data errors | No | No | No | No | No |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
Founder & CEO
Mrs. Samantha Elandary
Samantha Elandary is the Founder and Chief Executive Officer of Parkinson Voice Project. She holds an MA in speech-language pathology from the University of North Texas. Since 1999, Elandary has devoted her life to making quality speech therapy accessible to individuals with Parkinson’s.
Early in her career, Elandary recognized that people with Parkinson's could preserve their speaking abilities if they received continuous speech therapy and daily practice, along with support and encouragement. Left untreated, speech deficits develop into life-threatening swallowing complications.
In 2005, Elandary founded “Parkinson Voice Project.” The organization has developed a two-part speech therapy program: SPEAK OUT! & The LOUD Crowd. Parkinson Voice Project treats patients across Texas in its clinic and trains speech-language pathologists across the globe in this clinically-proven method. The vision of Parkinson Voice Project is to make their program accessible to patients worldwide.
Number of employees
Source: IRS Form 990
Parkinson Voice Project
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
There are no highest paid employees recorded for this organization.
Parkinson Voice Project
Board of directorsas of 09/18/2023
Board of directors data
Ms. Cherie Mahaffey
Owner, CRM Consulting
Term: 2021 -
Mr. Bill McFarland
Management Consultant
Term: 2021 -
Graham Geary
Retired
Susan Hartin
Retired
Monty Huffington
Retired
Bill McFarland
CCG Catalyst Consulting Group
Cherie Mahaffey
CRM Consulting
Samantha Elandary
Parkinson Voice Project
Pat Garrett
Garrett Petroleum
Angela Robb
TrueTip, LLC
Karl Robb
TrueTip, LLC
Mike Swanson
Retired
Nancy Clements Seay
Honorary
Brigid Lund
Retired
Clark Lund
Retired
Joseph Elandary
Financial Analyst
Tom Hartin
Entrepreneur
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
Professional fundraisers
Fiscal year endingSOURCE: IRS Form 990 Schedule G
Solicitation activities
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