PLATINUM2023

The Facial Pain Association

aka TNA - The Facial Pain Association   |   Suwanee, GA   |  www.facepain.org
GuideStar Charity Check

The Facial Pain Association

EIN: 22-3071645


Mission

The mission of Facial Pain Association is to provide support, education, and advocacy for people living with trigeminal neuralgia and other forms of neuropathic facial pain.

Ruling year info

1991

Chief Executive Officer

Melissa Baumbick

Main address

7778 McGinnis Ferry Road #256

Suwanee, GA 30024 USA

Show more contact info

Formerly known as

Trigeminal Neuralgia Association

EIN

22-3071645

Subject area info

Neurology

Diseases and conditions

Musculoskeletal diseases

Population served info

Adults

NTEE code info

Neurology, Neuroscience (G96)

Neurology, Neuroscience (H96)

Alliance/Advocacy Organizations (G01)

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

The Facial Pain Association

To achieve our goals, the FPA provides Support (support groups, telephone support contacts, 1.800#s, one-on-one patient support): Education (publications including brochures, books, CDs, DVDs, professional education, and professional outreach); Advocacy (newsletter, National and Regional Conferences); Research (Patient Registry);and our website, www.facepain.org, the number one resource on TN and related facial pain conditions.

Population(s) Served
Adults

Provide patient education and support through a nationwide network of support groups, interactive websites, regional and national conferences, publications.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of volunteers

This metric is no longer tracked.
Totals By Year
Related Program

The Facial Pain Association

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

The FPA currently has 95 total volunteers, with some volunteers serving in more than one role—41 Support Group Leaders and Co-Leaders | 38 Peer Mentors | 15 Project Volunteers

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To create educated facial pain patients and caregivers who can actively participate and advocate for their healthcare.
To improve the lives of facial pain patients and caregivers by supplying a network of group and individual support.
To advocate for facial pain patients by carrying their voice to the medical professional and healthcare community.
To become an invaluable resources to researchers and the medical community striving to improve the lives of people affected by facial pain.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

The Facial Pain Association
Fiscal year: Jul 01 - Jun 30
Financial documents
2021 2021 FPA 990 2019 FPA990 2018 FPA990 2011 Financial Statement
done  Yes, financials were audited by an independent accountant. info

Revenue vs. expenses:  breakdown

SOURCE: IRS Form 990 info
NET GAIN/LOSS:    in 
Note: When component data are not available, the graph displays the total Revenue and/or Expense values.

Liquidity in 2023 info

SOURCE: IRS Form 990

24.18

Average of 61.66 over 10 years

Months of cash in 2023 info

SOURCE: IRS Form 990

0.9

Average of 10.5 over 10 years

Fringe rate in 2023 info

SOURCE: IRS Form 990

10%

Average of 9% over 10 years

Funding sources info

Source: IRS Form 990

Assets & liabilities info

Source: IRS Form 990

Financial data

SOURCE: IRS Form 990

The Facial Pain Association

Revenue & expenses

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990 info

Fiscal year ending: cloud_download Download Data

The Facial Pain Association

Balance sheet

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990 info

The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.

Fiscal year ending: cloud_download Download Data

The Facial Pain Association

Financial trends analysis Glossary & formula definitions

Fiscal Year: Jul 01 - Jun 30

SOURCE: IRS Form 990 info

This snapshot of The Facial Pain Association’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.

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Business model indicators

Profitability info 2019 2020 2021 2022 2023
Unrestricted surplus (deficit) before depreciation -$43,616 -$72,325 $521,819 $11,171 $659,626
As % of expenses -9.3% -15.1% 124.7% 2.4% 137.5%
Unrestricted surplus (deficit) after depreciation -$43,616 -$72,325 $521,819 $11,171 $659,626
As % of expenses -9.3% -15.1% 124.7% 2.4% 137.5%
Revenue composition info
Total revenue (unrestricted & restricted) $410,116 $415,249 $889,945 $582,414 $1,101,961
Total revenue, % change over prior year -23.2% 1.3% 114.3% -34.6% 89.2%
Program services revenue 4.0% 8.6% 1.9% 3.9% 1.1%
Membership dues 17.8% 13.6% 7.9% 14.8% 6.1%
Investment income 0.0% 3.2% 1.1% 2.3% 2.0%
Government grants 0.0% 0.0% 0.0% 0.0% 0.0%
All other grants and contributions 75.4% 76.9% 81.4% 78.2% 88.6%
Other revenue 2.8% -2.3% 7.8% 0.8% 2.2%
Expense composition info
Total expenses before depreciation $469,485 $480,031 $418,388 $463,574 $479,788
Total expenses, % change over prior year -56.4% 2.2% -12.8% 10.8% 3.5%
Personnel 57.6% 64.2% 60.7% 64.2% 57.9%
Professional fees 2.3% 3.5% 1.2% 6.5% 1.2%
Occupancy 4.0% 2.8% 0.0% 0.0% 0.0%
Interest 0.0% 0.0% 0.0% 0.0% 0.0%
Pass-through 3.2% 0.0% 0.0% 0.0% 0.4%
All other expenses 32.9% 29.5% 38.1% 29.3% 40.4%
Full cost components (estimated) info 2019 2020 2021 2022 2023
Total expenses (after depreciation) $469,485 $480,031 $418,388 $463,574 $479,788
One month of savings $39,124 $40,003 $34,866 $38,631 $39,982
Debt principal payment $0 $0 $0 $0 $0
Fixed asset additions $0 $0 $0 $0 $0
Total full costs (estimated) $508,609 $520,034 $453,254 $502,205 $519,770

Capital structure indicators

Liquidity info 2019 2020 2021 2022 2023
Months of cash 2.6 10.2 25.3 23.1 0.9
Months of cash and investments 10.7 10.2 25.3 23.1 40.1
Months of estimated liquid unrestricted net assets 10.8 8.6 24.8 22.7 38.4
Balance sheet composition info 2019 2020 2021 2022 2023
Cash $101,007 $407,028 $880,738 $892,380 $37,907
Investments $315,919 $0 $0 $0 $1,564,323
Receivables $5,687 $16,482 $5,750 $1,400 $2,900
Gross land, buildings, equipment (LBE) $15,987 $0 $0 $0 $0
Accumulated depreciation (as a % of LBE) 100.0% 0.0% 0.0% 0.0% 0.0%
Liabilities (as a % of assets) 2.2% 19.6% 2.5% 2.1% 4.1%
Unrestricted net assets $421,752 $342,285 $864,104 $875,275 $1,534,901
Temporarily restricted net assets $0 N/A N/A N/A N/A
Permanently restricted net assets $0 N/A N/A N/A N/A
Total restricted net assets $0 $0 $0 $0 $6,159
Total net assets $421,752 $342,285 $864,104 $875,275 $1,541,060

Key data checks

Key data checks info 2019 2020 2021 2022 2023
Material data errors No No No No No

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Form 1023/1024 is not available for this organization

Chief Executive Officer

Melissa Baumbick

Melissa brings more than 25 years of experience in marketing and communications, having worked in both corporate and small business environments. She has spent the last 11 years with a nonprofit organization dedicated to the support of people with a rare disease. She holds a Bachelor’s Degree in Journalism from Ohio University and is determined to use her varied background to lead the FPA and provide essential resources to people living with facial pain.

Number of employees

Source: IRS Form 990

The Facial Pain Association

Officers, directors, trustees, and key employees

SOURCE: IRS Form 990

Compensation
Other
Related
Show data for fiscal year
Compensation data
Download up to 5 most recent years of officer and director compensation data for this organization

There are no highest paid employees recorded for this organization.

The Facial Pain Association

Board of directors
as of 05/18/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

David Meyers

No Affiliation

Term: 2019 - 2024

Jeffrey Bodington

No Affiliation

John Temple

No Affiliation

Anne Ciemnecki

No Affiliation

Melissa Anchan

No Affiliation

Ramesh Babu, MD

No Affiliation

Steve Fleming

No Affiliation

Jeffrey Fogel, MD

No Affiliation

Megan Hamilton

No Affiliation

Ally Kubik

No Affiliation

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 11/30/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 09/08/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.