GOLD2023

Beck Fahrner Syndrome Foundation

aka Beck-Fahrner Syndrome Foundation   |   Anoka, MN   |  www.beckfahrner.org
GuideStar Charity Check

Beck Fahrner Syndrome Foundation

EIN: 87-2064508


Mission

Our mission is to accelerate full spectrum research to cure Beck-Fahrner Syndrome (TET3 deficiency) and to empower affected families with information, knowledge, and connectivity.

Ruling year info

2021

Founder

Jaime Middaugh

Main address

3267 12th Ave

Anoka, MN 55303 USA

Show more contact info

EIN

87-2064508

Subject area info

Health care quality

Diseases and conditions

Population served info

People with disabilities

People with diseases and illnesses

NTEE code info

Fund Raising and/or Fund Distribution (G12)

IRS subsection

501(c)(3) Public Charity

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Fundraising

Help accelerate full-spectrum research to develop a cure for Beck-Fahrner syndrome

Population(s) Served
People with diseases and illnesses
Families

Where we work

Financials

Beck Fahrner Syndrome Foundation

Financial data

SOURCE: Self-reported by organization

Beck Fahrner Syndrome Foundation

Revenue & expenses

Fiscal Year: 2022

SOURCE: Self-reported by organization

Revenue
Contributions, Grants, Gifts $0
Program Services $0
Membership Dues $0
Special Events $0
Other Revenue $0
Total Revenue $8,830
Expenses
Program Services $3,354
Administration $0
Fundraising $0
Payments to Affiliates $0
Other Expenses $0
Total Expenses $3,354

Beck Fahrner Syndrome Foundation

Balance sheet

Fiscal Year: 2022

SOURCE: Self-reported by organization

Assets
Total Assets $5,596
Liabilities
Total Liabilities $0
Fund balance (EOY)
Net Assets $5,596

Operations

The people, governance practices, and partners that make the organization tick.

Documents
Letter of Determination is not available for this organization
Form 1023/1024 is not available for this organization

Founder

Jaime Middaugh

There are no officers, directors or key employees recorded for this organization

There are no highest paid employees recorded for this organization.

Beck Fahrner Syndrome Foundation

Board of directors
as of 02/11/2023
SOURCE: Self-reported by organization
Board of directors data
Download the most recent year of board of directors data for this organization
Board chair

Jaime Middaugh

Jaime Middaugh

Beck-Fahrner Syndrome Foundation

Ashley Page

Beck-Fahrner Syndrome Foundation

Jill Fahrner

Johns Hopkins Medicine

Jacqueline Harris

Johns Hopkins Medicine

Organizational demographics

SOURCE: Self-reported; last updated 2/3/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Non-binary, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data