Pediatric Brain Foundation

aka PBF   |   Springfield, MO   |  http://www.pediatricbrainfoundation.org

Mission

Pediatric Brain Foundation's Impact is Three-Fold:

1. Provide financial support to families of children impacted by neurological disorders, brain cancers and traumatic brain injuries.
2. Support and empower families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology.
3. Educate the public and advocate for expedited scientific research to find treatments and cures for the more than 14 million children living with some form of neurological disorder, as well as the millions more with brain cancers and traumatic brain injuries.



We're on a Mission:

• To support and encourage impacted families
• To cure pediatric cancers
• To repair traumatic childhood brain damage
• To offer therapies in the most hopeless cases of pediatric neurological disorders

Ruling year info

2001

Executive Director

Mrs. Nicole Carr

Main address

2144 E Republic Rd Suite 201B

Springfield, MO 65804 USA

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Formerly known as

Children's Neurobiological Solutions

EIN

77-0558364

NTEE code info

Fund Raising and/or Fund Distribution (T12)

Alliance/Advocacy Organizations (O01)

Neurology, Neuroscience (H96)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Brain Mapping Project

In addition to our vast library we also are conducting a Pediatric Brain Mapping Project that serves as the first step to developing mechanisms to connect patients with ongoing or future clinical trials. Currently we have approximately, 6,000 constituents, many of whom are scientists, physicians, and therapists, but the majority of our members are parents.

Population(s) Served

In addition to our vast library we also are conducting a Pediatric Brain Mapping Project that serves as the first step to developing mechanisms to connect patients with ongoing or future clinical trials. Currently we have approximately, 6,000 constituents, many of whom are scientists, physicians, and therapists, but the majority of our members are parents.

Population(s) Served

The Pediatric Brain Foundation accepts proposals each year that work in support of innovative, high-risk, high-reward research projects that could ultimately lead to critical discoveries or major advancements that accelerate the field of pediatric neurology. The Groundbreaking Research Grant program is designed to promote new ideas; those innovative ideas that may introduce a new paradigm, challenge an existing paradigm, look at existing problems from new perspectives, or exhibit other uniquely creative qualities. Research must be broadly related to pediatric neurological function, disease, genetics and trauma, or to related clinical, basic science, bioengineering or biotechnology, and public health problems, including neuromuscular disorders.

Population(s) Served

Palmer’s Smile is a special grant that provides children and their families with direct financial support. According to the CDC, it is estimated that it costs at least $17,000 more each year to care for a child with an Autism Spectrum Disorder than one without. For children suffering from cerebral palsy or other forms of intellectual disabilities their medical costs are 10 times higher than children without.

Population(s) Served

The Young Scientists fund is a unique fund that awards “young investigators” with fellowships to begin exploring new research questions related to the developing brain and therapies’.

We will also begin nurturing young minds through a summer institute (collaborating with LSP) to help empower the next generation of scientists and neurologists. The Summer Institute focuses on educating children ages 3-5, in a fun playful environment. The curriculum focuses on basic brain function and outlines the scientific method. Children become scientists and use equipment they may see in a science lab.

Population(s) Served

Our online library has connected over 6,000 families and scientists to the latest news and information on a variety of different topics related to neurological and traumatic brain injuries.
Our online library is currently home to thousands of articles, studies and medical papers that continue help educate our visitors. We update our library each day to ensure that any parent, family member, advocate, scientist or medical professional has one place for trusted news and developments.

Our Library also hosts a dedicated Disease Directory and Glossary. Like most Libraries we also have research assistants to assist in compiling data on specific diagnosis and subjects,

It is our sincere hope that our online Advocates Library will help to further educate parents and put them in contact with support teams within their local communities.

Population(s) Served

Where we work

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Financials

Pediatric Brain Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Pediatric Brain Foundation

Board of directors
as of 05/08/2017
SOURCE: Self-reported by organization
Board co-chair

Rochette Dahler

Pediatric Brain Foundation


Board co-chair

Matt Dahler

Pediatric Brain Foundation